Archive for the cancer survival Category

Can I Make A Difference?

Can I Make A Difference?

Firstly I would like to apologise for the delay in writing this post, as normally I publish at the weekend, but the last few days have been crazy, both with my work and socially and I am only now finding myself with an opportunity to sit down and write. I also wanted to include the conference that I was a guest speaker at on Saturday afternoon, so it is only now that the dust is really starting to settle. When I decided to start my work in cancer support, I don’t think I realised just how big a task I had taken on! The further I went the more I found, and I very quickly became involved in so many different aspects. At that time it was all new, and I

How Much Do You Value Your Time?

How Much Do You Value Your Time?

  This week has been a particularly busy time for me, as I needed to write several pieces and also deliver a presentation in London. There are times when I have so much work sitting on my computer I actually forget that most things I do are voluntary, and that I also have a family life too, which is getting busier as my grandchildren grow up. However whether I am being paid or not, I have always worked in the most professional manner, so I still feel the pressure of deadlines. Of course that situation is tougher when you are doing paid work, and I know that I am a workaholic, whether I am paid or not, and it is something that really motivates me. I used to live for

Improving Teenage Cancer Support

Improving Teenage Cancer Support

September, as well as being Blood Cancer Awareness Month is also Childhood Cancer Awareness Month,and I am aware from personal experience, of the unique problems that this age group face when dealing with a cancer diagnosis. However with the rapid increase in use of social media, the younger generation are beginning to find their own voice, and producing innovative ways of combatting those issues. At times, I feel our young people get forgotten, and I am always happy to have the opportunity to feature young writers. This site is truly international, and Rebecca is a young lady from Italy. She and her friends follow us and after the wonderful post by Emily, started talking about her new project. It is connecting young people around the world, to help them share experiences,

“Cancer won’t stop my education!” Emily’s story

"Cancer won't stop my education!" Emily's story

I make no apology for this blog being a little longer than usual as Emily is a young lady I admire greatly! At the age of 16 she was diagnosed with Non Hodgkin’s Lymphoma, but has not let cancer get in the way of living her life. Along with all the things young people do, Emily runs her own website to work with other young people around the world. What I find personally refreshing about Emily, is that she is forever smiling, and will not let cancer stop her from achieving her goals. We tend to assume that it is mostly older people that are affected by cancer but in this piece we are given an insight into some of the issues that younger people can face. Thanks so much Emily

The power of the ‘patient voice.’

The power of the 'patient voice.'

This week has been an incredibly busy, but extremely satisfying one. On Tuesday I was the guest speaker at St Georges Hospital in London, where I was invited to talk to a selection of staff and patients about my personal journey and  how it has affected my life. This was a fantastic opportunity for everyone to learn from each other, and particularly to help staff understand things from the patient perspective. This particular engagement meant a lot to me as of course it is my own hospital, and an opportunity to engage with the staff in a very different way to the normal patient/Consultant relationship. All of the staff had read and heard about my work, but few had actually seen me present live. Patients had also been invited, all

Work can be a positive focus!

Work can be a positive focus!

Despite it being seven years since I have been unable to work regularly, I still find it strange to be able to take trips away at short notice. This was the third one I have done recently and am beginning to enjoy life again. I don’t feel quite up to the long foreign trips just yet, but I am certainly enjoying that ‘freedom’ feeling. There are still many restrictions on my life but it seems that psychologically some of my old confidence is returning, I imagine, prompted by my slowly improving health. We have spent a few days away with our grandchildren on the English south coast, and although it was both physically and emotionally draining, it was fabulously refreshing. My cancer work was taking a back seat despite some very

Coping with loss

Coping with loss

From a personal health perspective, this week has been a very positive one. I have seen two lots of doctors and both agree that my progress is such that my treatment should be reduced further. Meaning that if we continue at this rate I may be off all treatment by Christmas. If this happens, it will be the first time since my diagnosis in 2007 that I will be without any treatment at all! My days of counting chickens are well behind me, but things are finally moving in the right direction for me, and I will take any positives I can. However, in the work I do, I am never far from reality, and this week, two of my ‘community’ have lost their fathers. I have been with them

The gold standard in cancer support

The gold standard in cancer support

  In my previous post, I mentioned that I had been invited to stay at a hotel for people affected by cancer and life threatening illnesses. That experience was probably one of the most uplifting I have had in recent years, but yet again I am writing this post with a large degree of frustration, and as we get further into the piece you will understand why. I consider myself very privileged to do the work I do and meet so many wonderful people. The ‘asks’ I receive are varied, but I will only ever consider projects if I can see some tangible results in the short term. So when I was invited to visit  The Grove Hotel in Bournemouth and check out their facilities for people affected by cancer, I was

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