Archive for the cancer treatment Category

How Much Do You Value Your Time?

How Much Do You Value Your Time?

  This week has been a particularly busy time for me, as I needed to write several pieces and also deliver a presentation in London. There are times when I have so much work sitting on my computer I actually forget that most things I do are voluntary, and that I also have a family life too, which is getting busier as my grandchildren grow up. However whether I am being paid or not, I have always worked in the most professional manner, so I still feel the pressure of deadlines. Of course that situation is tougher when you are doing paid work, and I know that I am a workaholic, whether I am paid or not, and it is something that really motivates me. I used to live for

Coping with loss

Coping with loss

From a personal health perspective, this week has been a very positive one. I have seen two lots of doctors and both agree that my progress is such that my treatment should be reduced further. Meaning that if we continue at this rate I may be off all treatment by Christmas. If this happens, it will be the first time since my diagnosis in 2007 that I will be without any treatment at all! My days of counting chickens are well behind me, but things are finally moving in the right direction for me, and I will take any positives I can. However, in the work I do, I am never far from reality, and this week, two of my ‘community’ have lost their fathers. I have been with them

The gold standard in cancer support

The gold standard in cancer support

  In my previous post, I mentioned that I had been invited to stay at a hotel for people affected by cancer and life threatening illnesses. That experience was probably one of the most uplifting I have had in recent years, but yet again I am writing this post with a large degree of frustration, and as we get further into the piece you will understand why. I consider myself very privileged to do the work I do and meet so many wonderful people. The ‘asks’ I receive are varied, but I will only ever consider projects if I can see some tangible results in the short term. So when I was invited to visit  The Grove Hotel in Bournemouth and check out their facilities for people affected by cancer, I was

Are you affected by fatigue?

Are you affected by fatigue?

In a recent post I wrote about how I wondered if I was being selfish, and that came around because I was finding difficulty keeping up with social arrangements etc. By coincidence I then had a review with my Consultant, when he asked me how I was feeling, and I mentioned my constant tiredness, we then had a very interesting conversation, and I learned a great deal. Like most of us affected by cancer our situation is unique, so things affect us all differently, as our circumstances can be very contrasting. According to my doctor I am a ‘one off,’ but I guess you can say that about everyone. His analysis of me was that I like to push boundaries, and although I have always taken note of his advice, I have continued to

Has cancer made me selfish?

Has cancer made me selfish?

I know, no one likes to consider themselves as selfish, especially me! But my encounter with cancer has made me wonder. Other people are always my concern, and the joy I receive in my life has always come from doing things for others. However, when cancer struck, my world turned on it’s head. Instead of me being a part of my family focus, I became the entire focus. Every where I went, people wanted to know about what was happening to me. Of course, I spent a long time in hospital, with chemotherapy, transplant and various complications, and I was the focus there too. Due to the complexities of my disease and treatment I required a lot of time and care from people. I was a very good giver, but a

The void when hospital appointments end.

The void when hospital appointments end.

The last few weeks have been busy, with some incredibly powerful stories shared, particularly regarding cancer and the work place. I was always aware that this was a much larger issue, than was talked about publicly, and some of the stories I have been told, have reinforced that view. My concern is that there are so many very important issues for people affected by cancer, that rarely get brought out into the open to be discussed properly. It seems that in many instances people feel uncomfortable talking about things publicly, and my impression is that this hinders progress in resolving these problems. I have found that one of the major obstacles to people dealing with issues is that of course many are coping with the physical and emotional aspects of cancer,

The power of nature!

The power of nature!

In the last couple of months the weather has been absolutely crazy in the UK. I don’t think I can remember such a prolonged spell of wind and rain, in my life time. I have seen pictures of flooding and damage, that I could never imagine I would ever see, and in recent days, we have been hoping that our house withstands the constant battering we have received from the wind. So many peoples lives are being scarred by these events. I have heard talk about long term plans, and Governments not spending money, so many different reasons for why we cannot cope with these circumstances. I’m sure you will all have your own ideas. Building on flood plains, dredging rivers, flood defences, the list goes on. I seem to recall

We have the tools and things must improve!

We have the tools and things must improve!

This week has been treatment week, so Monday and Tuesday are filled up, but I always try and make the most of my time, and am generally communicating via Twitter or talking to staff and patients. I have a continual thirst for information.I managed to talk to a good number of patients, and also a couple of very senior Health Professionals.   As you know, my ‘crusade’ is to improve support for people affected by cancer. Obviously, I make my own observations of things, during my endless visits to hospitals, but I am intrigued to see how other people view their situation. Do patients feel that things could be improved or are they content with what is being done? I also wonder if Health Professionals feel that more should be

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