Archive for the #hcsm Category

Patient Involvement In Cancer Care.

Patient Involvement In Cancer Care.

The last few weeks have been a bit of a whirlwind with so many positive things happening, it’s been very difficult to actually review the impact until now. Firstly, I have been receiving some innovative holistic treatment for the last few months, which is beginning to make an incredible difference to how I am able to focus my life. I would like to thank my incredible team at St Georges hospital for helping me and encouraging me to find the appropriate support. If I’m honest I don’t think it is a coincidence that good things have happened since I have started to be able to view my life differently. My confidence is slowly returning, and with it my enthusiasm for the challenges that lie ahead, both personally and professionally. Confidence plays

The joy of youthful innovation in cancer support.

The joy of youthful innovation in cancer support.

This week has been particularly busy, as instead of being stuck behind my computer, sending emails and writing, I was doing my preferred work, meeting people. My project work is evolving, and I am invited to see some of the new work going on in the cancer sector. I have also completed a magazine interview, where my opinions were sought on some very controversial subjects. It will be interesting to see that in print! ( My legal team are ready!) To add to that, I have received a very nice invitation to talk to some policy making professionals, so a very varied week all round. I have mentioned several times in my blogs that I love working with younger people. However, their issues can be incredibly complex. Unfortunately, many will not have been

The Importance of cancer support via social media

The Importance of cancer support via social media

Since I was introduced to the world of social media, I could immediately see how powerful it might be. Certainly, like any new tool, you have to learn how to use it properly, to get the best from it. Which takes time. With trial and error you will find what it does well, and what it does, not so well. Coming from a business background, and attempting to always keep things simple, I couldn’t see what wasn’t to like, by connecting like minded people, across the world. Once I found myself taken hostage by cancer, I applied similar rules here. If I can’t find physical help for what I need, let me look on the net! I couldn’t find what I felt was required, so I thought I would try and create something. People

Do you ever feel lost?

Do you ever feel lost?

Regular readers of this blog will know that I have just returned from a weeks holiday. For a lot of people this is not such a big thing, but due to my illness and treatment regime, this is only the second time I have been abroad in 6 years. Considering that I was a regular traveller, both socially and commercially, this is a dramatic change in lifestyle for me. After struggling with my change of circumstances for many years, tossing and turning in my own life, trying to make sense of things, I have finally found a way of life that fits in with my health commitments. My treatment and hospital visits involve a strict routine, so I have had to adjust my family and work requirements around that. Everything now

#braintumorthursday (Radio Interview 22/08/2013)

#braintumorthursday (Radio Interview 22/08/2013)

  Last week I was invited into Croydon Radio to talk about my work in cancer social media. The interview has proved very popular, and I have been asked to post a link on the blog. If you clickhere it will open up the link. If you then click download it, a slider will appear. My interview is the second half of the show, and you can use the slider to control what you would like to listen to. For any further information regarding the show etc please contact @BrainTumorAunty  I am very pleased to be an official Support Partner of  The Grove Hotel in Bournemouth, which is the only hotel in the UK specifically for people affected by  cancer.

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