Archive for the social media and cancer support Category

The Gift Of Growing Up

The Gift Of Growing Up

I can’t believe that I am approaching the age of sixty two. Not just because of my illness, but in general how quickly my life has gone. Since the incredible gift of my grandchildren, I am reliving my youth for the third time, having lived it on my own initially, then with my own sons afterwards. My parents lived through the war, and saw life totally different to the way I am now. We had to struggle for every penny and were one of the last in the street to have a television, phone and car. Difficult to remember that I have seen those times. When I went to school I saw the opportunity of breaking away from the cycle of poverty that my parents had lived. I rebelled against

“Relationships Are Everything”

"Relationships Are Everything"

I’m having a relationship with a lady from Australia I have only just met! Also a man from Prague, several people from America, and yes, Mrs L is fully aware. OK, it’s not in a face to face physical sense, but it’s great anyway. The last few weeks have been extremely busy with several presentations to do. Whilst speaking at the Swallows head and neck cancer conference I met Julie McCrossin, who was also doing a presentation. As soon as I saw her title slide I knew immediately she got what we are all doing. Without really realising it we are creating relationships daily. Either physically or through social media we are engaging with others. In many cases it can be hard work and sometimes not worth the effort, but

The Excitement Of New Experiences!

The Excitement Of New Experiences!

Let’s be honest for many of us life can be a bit of a drudge. Work, eat, sleep, repeat. Doing our best to make space for family, friends and a social life. Having said that there is no one more grateful for anything that life throws my way than me! ‘Every day is a bonus,’ is my personal mantra, and I absolutely make the most of the time, even negative experiences. I smile in the face of adversity, and on many occasions have talked to lovely people whilst solving my problems. I was lucky that I led a life that I loved before cancer, which gave me incredible life experiences. But since cancer I have had many more, very different ones, that I could never even begin to imagine. Writing,

Sex, And Our Children

Sex, And Our Children

As many of you know it is gynaecological cancer awareness month, and I have been doing a lot of work with the wonderful Eve Appeal. I was invited to attend a very interesting debate about the taboos of talking about women’s body parts in the correct terms and how this simple issue leads to so many problems. Poor communication being the main one, leading to possible complex health issues later on in life. Personally I have always believed that we have never dealt with sex education correctly since I was a child. Now our world has become more complex, with mobile technology and a rapid shift for younger people. It seems to me that the only logical way to deal with this is at school? But these days it seems

The ‘Cracks And Shadows’ Of Cancer Support

The 'Cracks And Shadows' Of Cancer Support

I was listening recently to the head of UK Building Control, discussing the red tape and complexities that had been allowed to develop over the years. This has produced the current system we seem to have, where nobody is sure of who is responsible for what! Regulations originally put there for safety, but now so difficult to unravel that people can hide behind them. Also creating so many cracks that many people slip through the system. This has all come about because of the terrible tragedy at Grenfell Tower.  Listening to this guy speak about it reminded me more and more of what has been created in the world of cancer support. An N.H.S which is struggling to cope with the new challenges that cancer survivorship is bringing, and not

Thinking ‘Outside The Box’ Should Be Normal Now!

Thinking 'Outside The Box' Should Be Normal Now!

It’s been some time since I wrote a new piece due to refocusing my priorities. Since Your SimPal has been live, approximately 6 months now, it has dominated my work. We are now helping increasing numbers of people across the country, and interest in our work is growing organically. It is challenging in so many ways, yet so satisfying knowing we can do something to improve the lives of many affected by cancer. People now know me for my interest in innovation in the cancer sector. There are many ways to help with existing problems if only large organisations would ‘look up’ and search outside their safety zone. Main stream services have little imagination having been ‘corporatised.’ The problem us innovators face is that most funding goes to large organisations and

Cancer Does Not Discriminate (Jeremy’s Story)

Cancer Does Not Discriminate (Jeremy's Story)

In my work I get to meet some wonderful people and Jeremy Marshall is one of those. A man who’s life was also brought crashing down with a cancer diagnosis. I was delighted that Jeremy accepted my invitation to share his experiences on the site. His career is one that most of us can only dream about, but of course when it comes to cancer there is no discrimination. “I have had a very happy and blessed life. I was never in hospital for a day, married for nearly 30 years and  have three wonderful children plus a really interesting career. Then about 4 years ago I found a small lump on my ribs. At my wife’s urging I went to the GP who said “it’s probably just a fatty

More Innocent Victims Of Cancer Politics

More Innocent Victims Of Cancer Politics

As many of you know, I have frequently talked about my disgust for the incredible amount of politics that are involved in the cancer world. Political games played by organisations that impact on people’s lives. The more insight I get the more it greatly disturbs me. Many people affected by cancer, trusting organisations to help them when they are vulnerable, little understanding they are just a pawn in a very big and financially lucrative business! From a game of political football by our politicians, to emotive adverts everywhere we turn. Everyone telling us they are there to help, but the practical help provided is just not at all relative to the money invested/donated. So much money that the cancer world receives gets lost in politics. Drug companies, healthcare, politicians, all fighting