How do you deal with your cancer?

How do you deal with your cancer?

Well, my previous post, where I was discussing the issues of survivorship, has become the most read, of all my pieces. It has provoked so much discussion throughout social media, which is very pleasing. Through this blog, I try and publicise issues, that people may find difficult to talk about. Also, our healthcare providers tend to ignore them, as there is not really a positive solution. I speak from my experiences as a current patient who is having treatment and spending a lot of time in the system. My pieces are up to date and based on what is actually happening. You may be reading plenty of reports from different areas, but I can tell you exactly what is happening now. My subject this week is about the contrasting ways

Are we prepared for increasing survivorship?

Are we prepared for increasing survivorship?

This question is actually not as crazy as it sounds. In the last few weeks, I have had numerous conversations with a very good cross section of people about the lack of support for people affected by cancer, once they step outside the hospital environment. Despite, the length of time of my own personal experience, I am still shocked, how little support is available. During my conversations with professionals, the biggest issue that I find is a demarcation of responsibility. My doctors, are doing their best to keep me alive. They care for all of my physical issues, either as an inpatient or by giving me drugs which I can take at home. Once I am outside of that scenario, it feels that I am on my own. My family and

#braintumorthursday (Radio Interview 22/08/2013)

#braintumorthursday (Radio Interview 22/08/2013)

  Last week I was invited into Croydon Radio to talk about my work in cancer social media. The interview has proved very popular, and I have been asked to post a link on the blog. If you clickhere it will open up the link. If you then click download it, a slider will appear. My interview is the second half of the show, and you can use the slider to control what you would like to listen to. For any further information regarding the show etc please contact @BrainTumorAunty

“What if?”

"What if?"

In my previous post I talked about the value of time, something I am beginning to be very aware of in my life. Being on fortnightly treatment, those days become markers in my life, and they seem to come round with increased speed.In the last few weeks I have been able to fit in some really exciting projects, and I have been asked numerous times about my working life before cancer, by people I have only recently become acquainted with. Therefore they don’t know anything at all about my experience. However, they seem genuinely surprised by the variety and quality of the projects that I am involved with. This causes me an element of internal frustration! In my regular working life, I would be doing a lot of difficult negotiations, for

What value do you place on your time?

What value do you place on your time?

Back in the days when I was a full time business consultant, I was very aware of the value of my time, as I was paid by result. Generally, the harder I worked, the more I earned. For most of us, the more hours we work, the more we get paid. But take us out of the work place, and it becomes more difficult to find the value of our time. Also, we may well value our own time very differently, to how others do. This post has arisen from a chance conversation, I had with a business expert who I am in contact with via social media. I learned so much from our chat, and I was very shocked to see how much my business brain, has been suffocated,

“My wife has just joined your club!”

"My wife has just joined your club!"

When I answered the phone, a few days ago and spoke to a friend of mine, I started with our normal banter about football. We usually discuss the latest rumours surrounding our football club, who we should or shouldn’t sign, and general ‘man rubbish.’ However this time was different. There was a very quick break in proceedings, and my pal announced that his wife had joined my club! For a minute, my mind went blank, and I assumed that he meant she had signed up to receive my blog notifications. He then very quickly followed that, by saying that his wife had been diagnosed with cancer! That conversation prompted this weeks post. Due to my own personal situation, and the work that I do, I am talking cancer, on a daily

Celebrating life and sharing the legacy

Celebrating life and sharing the legacy

The last few weeks have been particularly tough for me mentally. After more than 6 years on my ‘bumpy journey,’ I have seen so many heart breaking situations, many personal, but plenty from friends and colleagues. I have often thought that I have experienced so much in the cancer environment, that there surely can’t be anything left that can shock me and pull on my heart strings. But there always is!! Ironically, my personal health has been the steadiest it has been for some time. The good weather has finally arrived, and the constant threat of colds, flu and chest infections, has subsided for the time being. My maintenance treatment is keeping me mobile, and I am slowly peeping back into the real world again, although with caution, I might add!

We leave our footprint wherever we go!

We leave our footprint wherever we go!

I liken myself in many ways to a butterfly. A typical week for me involves meeting a lot of different people in many varied environments, also communicating frequently through social media with people from around the world, on many contrasting subjects. I know a lot of people, and a lot of people know me. In fact strangely, I know many more people now, than when I was travelling the world for my work. We live in a very fast moving society, and time is always at a premium for everyone, so the butterfly analogy comes from the fact that, although I communicate with so many people, very little is in depth. On many occasions it may be a brief, “hello, how are you?” but a lot of these people I see

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