Life after cancer, for a young person. (Samantha)

Life after cancer, for a young person. (Samantha)

One of the biggest things that I have learned, since I was diagnosed, is that outside your circle of family and friends, it is extremely difficult to find emotional or practical support to enable you to start living again.Once you are diagnosed, you have a new ‘life companion.’ If you are lucky enough to get into remission, it is very difficult to feel that you have completely broken your association with the disease. I have been talking and blogging about these issues, as I feel that they are rarely mentioned to patients.Cancer has totally turned my life upside down, and I was a very competent and confident person, before this process started. It now feels that I have been thrown into a pool without being taught how to swim. Yes,

#never2young bowel cancer, Hayley’s story

#never2young bowel cancer, Hayley's story

One of the great benefits of social media, is that that you can see a lot of up to date information quickly. With Twitter and this blog, I am in contact with people around the world, not just involving blood cancers, and stem-cell transplants, but many others too. I enjoy keeping up with other aspects that I may not be quite so familiar with. Over time, it seems that I have connected with a lot of people affected by bowel cancer, and I am benefiting from their knowledge and support. Just over a week ago, my Twitter time line went crazy with a new campaign, #never2young. It was raising awareness about early diagnosis in young people. Bowel,is the 2nd biggest cancer killer in the UK, and like many, it is

My humour gets me through!

My humour gets me through!

For most of this winter, I faced my nemesis. Constant cold, damp weather.For a man with the poor immune system that I have, I tremble when watching winter weather forecasts. I seem to stumble from cold to flu,to everlasting chest infection.Finally get rid of that, then the next one starts.Feeling under the weather (literally) for long periods takes it’s toll on me, as I try to continue with parts of my life. I am now towards the 6th anniversary of my diagnosis, and when reviewing the things I faced, there are times that I honestly don’t know how I have the strength to continue. I thought of something that immediately made me smile, and then I realised. Only my humour could have got me this far. This post was written about

Sometimes we hear, but don’t listen.

Sometimes we hear, but don't listen.

We all lead busy lives, and it is impossible to fully dissect all the information that we get given, either by word of mouth or written. With the explosion of social media, smart phones and tablets, we are being bombarded by videos, tweets, Facebook messages, blog posts, advertising etc. It is getting, ‘noisy’ out there! We are now choosing to open our lives up further, as many people are on their phones, tablets,etc, as soon as they wake up till going to bed. Almost in every venue now, it has become accepted that people are fiddling with their phones, checking emails or social media etc. Even our children are following in our footsteps, being glued to their phones wherever they go. Our brain is busy, with all the random stuff it

Carol’s legacy will live on

Carol's legacy will live on

I consider myself very privileged to meet and communicate with the very wonderful people that I do.Everyone’s case is special, and there are always moments that make me draw breath. It never ceases to amaze me, the number of inspirational people that are in this world.Every now and again, I see a story that stops me in my tracks, and this is one of those! A fantastic example, of how Social Media, is helping the world join up, and enabling us to do things that would have seemed impossible, just a few years ago. I wanted to share Jeffrey’s story with you all. A young guy, who understands the value of doing things while you can. Carol, his grandmother has terminal lung cancer. He wants to use his skills to preserve

Cancer and travel insurance, a toxic mix.

Cancer and travel insurance, a toxic mix.

As if the complications of a cancer diagnosis weren’t tough enough, it is very difficult to take even a very short break in sunnier climes, without a generally extremely complicated and expensive process of talking to prospective insurers.I used to almost hear the insurer rubbing his hands together when I mentioned cancer.The conversations would take ages. How long had I been ill, what treatment had I received, how long had I been in hospital etc? Once we had gone through the process, it would seem that they plucked a quote out of the sky, which I think they had got confused with the price of my holiday! I was taking a week in Europe, not a year in war torn Africa.The price of some insurance quotes, was far more, than if I had hired

Young adult cancer. Ann-Marie’s story (Isolation)

Young adult cancer. Ann-Marie's story (Isolation)

Following my previous post about loneliness, which has had some incredible feedback, I just had to publish this account of a very brave young lady, Ann-Marie, who from the age of 4 has battled Ollier Disease andthen at the age of 25 was diagnosed with bone cancer. Ann-Marie bravely wants to share her story through this blog, to raise awareness of how isolated people can feel, at the time they need support the most! Some of our younger readers may recognise the roller coaster of emotions. This also emphasises that these emotions can effect you, at whatever age you are This post is slightly longer than usual, but an incredibly powerful message! “I fought the fight; I’m out the other side but what now?”  So, it was a little while ago now but I

Loneliness, the side effect with no cure

Loneliness, the side effect with no cure

When I started this blog, I mentioned the feeling of loneliness that can play a big part in the lives of people affected by cancer. Today I want to go into a bit more detail about that, with some examples. Like a lot of things in life, it is hard to imagine, these effects unless you have experienced them yourselves. As the regular readers of my blog will know, I have a wonderful family and a large, fantastic group of friends. I am involved in numerous projects weekly, plus I am still having regular treatment. So there are very few times that I am truly on my own. Yet there are many occasions when I can feel lonely. That doesn’t make sense I can hear you saying.I know it sounds