Life wants to wake us, when we start to dream!

Life wants to wake us, when we start to dream!

Normal service has been resumed in my life. Conferences successfully completed, and treatment has recommenced. Actually, there is a lot to be said for routine. You know where you are with it! Like a comfy pair of slippers. The odd incident of excitement is enough to stimulate me through ‘normal’ now. Maybe that is an age thing, possibly my health dictates that now, as excitement was a major motivating factor in my life. Always pushing the boundaries, and trying new things, normal was boring. Now I think twice before going to a different restaurant! I don’t really know how that has happened. Visiting hospital for two days, gives me the opportunity, of meeting yet more inspiring people, and always starts me thinking. Now, after 6 years, I am a ‘veteran,’ and nothing

Carers, our unsung heroes! Fiona’s story

Carers, our unsung heroes! Fiona's story

We all know what the word carer means, but many carers would not consider themselves to be one! Husbands, wives, friends and family, are doing what they consider natural, helping those of us that need it. Without their help, life would be, in many instances, impossible. In my own case, ever since I was diagnosed, my wife has swung into action, taking care of everything that I couldn’t manage at times. Putting up with my awful moods, sorting out my medication, and at times dressing me and driving me to appointments. She is there for me during my dark times, and she has sacrificed a lot of her life for me. Cancer now dominates my life, whether I like it or not! With my own health being constantly monitored, I use

All about the journey, not the destination.

All about the journey, not the destination.

I am writing this post just before I am a guest speaker at European Bone Marrow Transplant conference(page 7+181)  in London.So I thought that it would be an ideal time to write about how I got to this stage. When most people talk about their association with cancer, they generally use two expressions.Either their fight/battle, or journey. Personally, I rarely use ‘fight,’ as I feel that I am just doing the best I can. My preferred word is journey. I guess it is not so much a journey, as it is a ‘mystery tour,’ as we never actually know where we are heading! During my life before cancer, I always felt that I knew where I was going. My goal was to reach a healthy and wealthy retirement, enjoy some sunshine and have

Life after cancer, for a young person. (Samantha)

Life after cancer, for a young person. (Samantha)

One of the biggest things that I have learned, since I was diagnosed, is that outside your circle of family and friends, it is extremely difficult to find emotional or practical support to enable you to start living again.Once you are diagnosed, you have a new ‘life companion.’ If you are lucky enough to get into remission, it is very difficult to feel that you have completely broken your association with the disease. I have been talking and blogging about these issues, as I feel that they are rarely mentioned to patients.Cancer has totally turned my life upside down, and I was a very competent and confident person, before this process started. It now feels that I have been thrown into a pool without being taught how to swim. Yes,

#never2young bowel cancer, Hayley’s story

#never2young bowel cancer, Hayley's story

One of the great benefits of social media, is that that you can see a lot of up to date information quickly. With Twitter and this blog, I am in contact with people around the world, not just involving blood cancers, and stem-cell transplants, but many others too. I enjoy keeping up with other aspects that I may not be quite so familiar with. Over time, it seems that I have connected with a lot of people affected by bowel cancer, and I am benefiting from their knowledge and support. Just over a week ago, my Twitter time line went crazy with a new campaign, #never2young. It was raising awareness about early diagnosis in young people. Bowel,is the 2nd biggest cancer killer in the UK, and like many, it is

My humour gets me through!

My humour gets me through!

For most of this winter, I faced my nemesis. Constant cold, damp weather.For a man with the poor immune system that I have, I tremble when watching winter weather forecasts. I seem to stumble from cold to flu,to everlasting chest infection.Finally get rid of that, then the next one starts.Feeling under the weather (literally) for long periods takes it’s toll on me, as I try to continue with parts of my life. I am now towards the 6th anniversary of my diagnosis, and when reviewing the things I faced, there are times that I honestly don’t know how I have the strength to continue. I thought of something that immediately made me smile, and then I realised. Only my humour could have got me this far. This post was written about

Sometimes we hear, but don’t listen.

Sometimes we hear, but don't listen.

We all lead busy lives, and it is impossible to fully dissect all the information that we get given, either by word of mouth or written. With the explosion of social media, smart phones and tablets, we are being bombarded by videos, tweets, Facebook messages, blog posts, advertising etc. It is getting, ‘noisy’ out there! We are now choosing to open our lives up further, as many people are on their phones, tablets,etc, as soon as they wake up till going to bed. Almost in every venue now, it has become accepted that people are fiddling with their phones, checking emails or social media etc. Even our children are following in our footsteps, being glued to their phones wherever they go. Our brain is busy, with all the random stuff it

Carol’s legacy will live on

Carol's legacy will live on

I consider myself very privileged to meet and communicate with the very wonderful people that I do.Everyone’s case is special, and there are always moments that make me draw breath. It never ceases to amaze me, the number of inspirational people that are in this world.Every now and again, I see a story that stops me in my tracks, and this is one of those! A fantastic example, of how Social Media, is helping the world join up, and enabling us to do things that would have seemed impossible, just a few years ago. I wanted to share Jeffrey’s story with you all. A young guy, who understands the value of doing things while you can. Carol, his grandmother has terminal lung cancer. He wants to use his skills to preserve