Do we take our Health Service for granted?

Do we take our Health Service for granted?

I have spent the last two days having a treatment called Extracorporeal Photochemotherapy, (E.C.P).I have this treatment for two days every two weeks, and have been on this regime for six months now, with at least another three months planned. It may have to continue beyond this period, depending on results.There are very few units in the country that provide this treatment and I have been lucky enough to have been referred to the major one in London. My journey since diagnosis, is well into it’s fifth year, and I don’t think that there has been any year where I haven’t been in hospital as an in patient, having some serious treatment. This includes a stem cell transplant and a top up of cells two years later, as the original

Does choice make our life difficult?

When I go looking to buy something, I like to see a good selection. Different colours, different brands, different prices. That is where the problem starts!!! I can find a reason to buy every version, but I have to choose only one. Now I am in turmoil, so many options. Am I going to make the right choice? Will I be happy when I get home? So many questions!! If when I went to the shop there was only one item in one colour, it would be easier, but I wouldn’t go back to that shop, as I feel I deserve to choose, and I want a selection. So I am knowingly putting myself into a state of confusion, but will always select the shops with the widest range of products. Also, when

Time to change our ways of working?

As I have mentioned several times in this blog, I come from a business background. I spent the best part of 30 years, building businesses from scratch or improving the efficiency of existing ones. Wherever I go, socially or business, I am always looking at how well the businesses work.I look at the staff, the service provided, the value for money, the environment, and the overall general efficiency. My wife thinks I am being nosy, but I am generally interested in all types of business. In most instances I know nothing about, the products of the business, ie manufacturing, catering, making cars, or fixing people, to name but a few. However in my experience, there are common elements to running any business. Product, cost price, selling price,  staff costs equipment costs, and providing

Working together

Last week, I was invited to attend a meeting where some work had been done with some ethnic groups to help understand why there are problems in their communities regarding cancer awareness. The fact that awareness is not as good as it could be, means that people get diagnosed much later than may have been possible, therefore their survival rates are that much worse.So it is important to find out why this is happening. It was well attended, with a really broad cross section of people. There were charity people, health professionals,senior people from the locality, senior politicians, and many people affected by cancer. A very broad selection of cultures, colours and backgrounds were represented. There were two pieces of research done. One with the Afro Caribbean community and one with the

It’s ok to laugh too!

Humour plays a very big part in my personality, and always has done. I have always been able to see the funny side of most situations, even if sometimes there doesn’t appear to be one! In my life before cancer, it certainly helped me with my work, as everyone remembered me as ‘that funny guy’ and in a very competitive industry, it seemed to give me an edge. When I started coming to hospital, I was  aware that things were going to be very different to what they had been, in many ways! I was spending a lot of time in waiting rooms, doctors offices, and the chemo ward.How was this going to affect my personality? Was I going to lose my sense of humour and get depressed? Ironically, that was

Hope, the most important emotion?

Dr. Barbara L. Fredrickson, Principal Investigator of the Positive Emotions and Psychophysiology Lab and Professor at the University of North Carolina, Chapel Hill, argues that hope “…comes into play when our circumstances are dire”, when “things are not going well or at least there’s considerable uncertainty about how things will turn out”. She states that “hope literally opens us up…and removes the blinders of fear and despair, and allows us to see the big picture , thus allowing us to become creative” and have “belief in a better future”. Unfortunately, as I write this post, I have yet another chest infection. Low immunity and immune suppressing drugs is disaster for me! Sneeze, cough, and then coughing for about a month, night and day. All energy gone!! However, you guys out there are giving me

Are we really in charge of our own lives?

I have just received a letter from the Department of Work and Pensions, explaining that they have had a review of my personal health situation, and they consider me to be in the stream of people who will not be able to actively seek work in the foreseeable future.I can’t say that I really consider this to be a letter to welcome, as, although it means that they will continue to hand me the meagre crumbs of money that I am entitled to, it also shows what they believe to be my true health situation. We are all aware that the Government is keen to get as many people off benefit, and back to work. Rightly so by the way! But it seems to have given up on me, for

Fundraising, and a tribute to Claire Squires

The first thing that I wanted to do when I left hospital for the first time in 2008, was give something back to the wonderful hospital and staff, that had saved my life. They had given me a lot of difficult treatment, and had looked after me, when I could do almost nothing for myself. They wanted nothing back from me and told me that it was their job.I had never been in a world like this before. I was used to doing something in return, mostly handing over money. After a lot of thought, I decided that as I knew a lot of people, I would go round with my begging bowl and hopefully they would be as passionate about my cause, and donate some money.I also realised, like a business you

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