Time is my puzzle. Any answers??

Time is my puzzle. Any answers??

http://bountifulbasketfoodshelf.org/?page_id=199/ Being busy is what most people would answer if you ask them what they are up to. I secretly think that people would be embarrassed to say that they weren’t busy! They would feel out of step with others. Maybe they would think that they weren’t popular? Why have others got so much to do and I haven’t?? People don’t like to appear different, do they? Busy is always a great excuse that people use when they don’t really want to do something and find it difficult to say so. Would you like to go to the gym? Would love to, but too busy! People are never too busy to do the things that they really want to do because they make the time! Basically, we find time for things

A positive couple of days!

A positive couple of days!

Well one good thing is that Monday has come and gone. The bad travelling to and from the hospital is done, and most importantly, so is the treatment! My treatment has been changed from Fri/Sat to Mon/Tues as we always seemed to have a problem on Saturday. As I may have expained before, my veins are poor, meaning that they are very narrow because of the chemicals that have been put through them in the last few years. The treatment that I am currently having, means that they have to find a good vein to connect me to. It seems like I only have one left that is convenient and therefore each time the same one is used. This has caused problems in the past and has meant that both

Routine in my life. (Not my choice!)

Since my early days of work, I very quickly discovered that I was not a person who enjoyed routine. Apart from the fact that I had to go to work every day, that was as much routine as I required! That is why, after a few years of working for large organisations I decide the time was right to spread my wings and work for myself. After nearly 30 years of life where I never new what the next day would bring, I am now enduring a life of fairly strict regime where I go from one appointment to the next and one round of treatment to the next. I mention this as I start my next round of photopheresis at St Thomas’s today. To have the desired effect this has to take

Volunteering, what a privilege

Volunteering, what a privilege

Having been forced to give up the daily slog into London, it comes as a shock to the system when I have to do it. Especially as it is part of my volunteering process.But my goodness there is such a fantastic payback by the end of the day! I have had a lot of conversations regarding volunteering recently, and I can only say to anyone who is considering it, Just Do It!! On most Wednesdays, I meet a lot of volunteers at different stages of their journey. Some starting out, and others seeking a change of direction. Some are university graduates, others are older people looking to continue using their skills whilst looking for work.Each one with their own motivation. A lot of people get involved, because they or their

Just like old friends!

Where does the time go? Another 3 weeks have gone past and another review has come and gone. Sitting in the tatty, cramped waiting room that I have come to know so well. Peoples faces have various signs of emotion on them.I can only imagine what is going through their minds. Different people at different stages of their journey. Some yet to get their diagnosis, others dealing with theirs. I have to say that it is not at all the peaceful environment that patients need to deal with their issues. Two large toilets that open out into the gaze of fellow patients does not help things. The room is very cramped, tatty and busy. There is no private area at all.It reminds me of Clapham Junction station. Busy and noisy. It

Recreation and relaxation

Recreation and relaxation

Its Monday morning and I am preparing myself for my latest appointment with my consultant @ St Georges. We meet every 2/3 weeks to discuss my progress. Unfortunately there are always problems. that is why the visits are so frequent. This time I have yet another cold coming and my inflamation markers are rising meaning I have something going on inside and they will have to do more tests! Really enjoyed the w/end and it made me realise how important R+R is to people. I think we get so busy with work etc we forget that our body needs a break from it’s routine. Even though I don’t work, I have a routine, which more often than not involves hospital visits, which in themselves are tiring! Let alone if you

Wonderful People

Wonderful People

Had an awful journey last night to my meeting. Arrived late, (Which i hate!!)  awful traffic, even at half term. Plenty of meaty subjects to discuss and we had most members in attendence, which made for a lively meeting. At the end of the meeting I was presented with a hand made card, and a bottle of fiz, to celebrate being selected for the TV show.What a lovely suprise!! It is so lovely that most of the areas of my work will be represented on the show. This is a testimony to all the fantastic people that I work with. Without their help I couldn’t do what I do. A fitting tribute and thank you all. It is a pleasure working with you!   That made me think! A

Feeling Tired!

Yesterday, was a really busy day. Meetings interviews and many phone calls. All positive stuff and great to be able to help when able. After a day like that I know that I have to take it easy, as my immune system will struggle and I can get sick very quickly. Also my blood treatment is taking it’s toll and by the time I have recovered sufficient energy from my previous treament, I am back having my next one. It is frustrating as my mind is so active but my body struggles to keep up. Still I have the experience to know when enough is enough. I am spending today at home,and later tonight I have a meeting at St Georges with my colleagues on the I.C.E group. We work