This week has been an absolutely incredibly busy and fulfilling time. I have spent my week, communicating with people around the world. I have spoken to patients, charities, complementary therapists, cancer service providers, media people, volunteers and NHS professionals.
Most of this is happening because organisations are beginning to use this blog as a resource in the work that they do, helping people affected by cancer. I have always been aware of the many varying needs of patients and families, but am now starting to discover, how many organisations there are out there, all helping people with different aspects of their care.
The beauty of the internet, is that we are now finding each other, and working together, slowly forming a worldwide community.What I am also seeing is that because this is a relatively new way of working, no one has really worked out any official set of rules, so that even Governments and regulatory bodies are not exactly sure how they can control things. The down side of that is that there is a lot of unwelcome stuff out there for people to access. However, the very massive positive for me, is that because there is very little red tape, we can actually cut away a lot of the unnecessary barriers that are put up by vast public organisations, and be available quickly to the people who need us most.
This blog is independent, and not sponsored at all. I work with numerous charities around the world, and they very kindly signpost their supporters to it. Anyone can find it online, with a simple search, so it is there for all to see. As my regular readers are aware, I started this blog, as my experience as a long term patient showed me, that there were very few blogs that told the ‘ warts and all story ‘ of life through the eyes of an incurable cancer patient, in language that everyone can understand.
This sort of work, doesn’t wait for an appointment to see someone, before it can happen. It is on their computer immediately. Have you tried getting to see that person who can make a decision? If you get past the ‘out of office’ there are the eternal meetings, and finally annual leave! By that time, you have forgotten what you wanted in the first place.
My position is unique. I don’t have a career, job title, salary or pension to protect, so can be truly unbiased in what I talk about. I have nothing to gain personally from my work, except satisfaction, which is a more than ample reward. The fact that there are so many readers around the world is truly wonderful, and for your regular following and support, I thank you. Your encouragement has helped me drive this forward with enthusiasm.
As I mentioned earlier in this post, I have heard from some incredible people, with some really inspiring stories. I would love to be able to share some of your experiences, as I know that our expanding readership would benefit from them. Some of you have mentioned that you would like to write a piece, which I will gladly post.Please feel free to leave a comment here or Facebook/Twitter