Despite, the fact that I don’t work, my weeks are never boring. My trips to hospital use a lot of my time, and I have calculated that in every month, I spend a complete week at hospital. I have had to become very selective in the projects that I am able to get involved in, so that I allow myself, enough recovery time between treatment. My reality is that I am unable to do the things that my brain remembers I used to manage! It has taken me a long time to come to terms with that. I watch enviously as my friends fill up their social lives, and plan holidays. Remembering those days, as if they were yesterday. Now, there are times when an evening out can feel like
Archive for the cancer awareness Category
After 6 years of treatment in the cancer sector, my learning never stops. Unlike a lot of things that we learn in our lives, everyone’s experience is unique. So, no amount of reading, or talking with others can ever prepare you, for how you will deal with your own cancer diagnosis. Some people just quietly get on with what they have to do, and others are happy to share their experiences. There just isn’t a correct way of dealing with things, just what feels right for you. One of the things that I have learned,is so much that happens around cancer is out of your control. Not just how you feel about things, but particularly how other people view you, because of cancer. I have written about this on several
My treatment has started again in earnest this week. Unfortunately, my efforts to regain some of my life have not been successful, and after trying my treatment monthly, my graft v host disease is beginning to get a grip on my body again, and I must resume a more aggressive regime of fortnightly. I did start a self centred moan to my Consultant, who smiled. She said that I will HAVE to slow down now, and that the staff would be pleased to have my company more often! There are certainly many down sides of being in the hospital so frequently, and the treatment is tiring, but unlike chemo, it is not toxic. I am still plugged into a machine for hours but am able to focus on my thoughts.
For the first time since I started this blog, I thought I might be suffering ‘bloggers block.’ Not as painful as it sounds! Nothing had really grabbed my imagination, but then I received two ‘tweet pics’, from people who are going through transplant, and bumped into a lady in clinic who I hadn’t seen for ages. I struggled to recognise any of them. With a combination of the drugs and treatment, they were going through, their physical appearance had changed dramatically. All three had lost their hair and a lot of weight.Despite my own personal experiences, and knowledge, I am always shocked to see the effects of that on the body. Changing appearances, is a common issue for people with long term illness, and I had written the below piece last
One of the great benefits of social media, is that that you can see a lot of up to date information quickly. With Twitter and this blog, I am in contact with people around the world, not just involving blood cancers, and stem-cell transplants, but many others too. I enjoy keeping up with other aspects that I may not be quite so familiar with. Over time, it seems that I have connected with a lot of people affected by bowel cancer, and I am benefiting from their knowledge and support. Just over a week ago, my Twitter time line went crazy with a new campaign, #never2young. It was raising awareness about early diagnosis in young people. Bowel,is the 2nd biggest cancer killer in the UK, and like many, it is