Archive for the cancer charities Category

Struggling With A New Life

Struggling With A New Life

Running this blog has given me more positives than I could ever have imagined. ‘Meeting’ other people who are affected by cancer is certainly one. Being able to share their very personal stories to enable us all to learn is another. It is always interesting to see the different ways that we deal with our disease and follow on issues. Some people find religion, others totally change their lifestyles as they re-evaluate what is important to them. In this instance, Simon looked in detail at his diet. It affected me in reverse and I gave up looking at what I ate, to try and maximise my enjoyment from food! But I am certainly inspired by Simon’s story and particularly his physical achievements so maybe he has a point? “I was diagnosed

Getting Physical After Cancer

Getting Physical After Cancer

In the work I do I feel I have discussed so many subjects related to cancer, but after a conversation with Sam I realised I hadn’t really talked too much about our physical relationships. Many might say, that is the least thing to worry about, but for a lot of us they are so important. Of course cancer doesn’t only affect us but our partners too, and things can change dramatically after treatment. What is also crucial here is that cancer affects all ages, and there are so many young people dealing with these issues as I write. I can’t begin to imagine starting my time of ‘sexual exploration’ having had serious treatment and trying to deal with the physical and emotional issues of that. On reflection in all my 8 years of treatment,

Corporation Is Stifling Cancer Support Innovation

Corporation Is Stifling Cancer Support Innovation

When I was initially given such a short time to live, my ambition was just to make a noise about how random and disjointed cancer support really is. But now after many years of unexpected life I have a strategy, a plan and an infrastructure to help with that cause. There have been many improvements in that time of course, but this week emphasised how there is still  a massive lack of desire to collaborate. I am now working with three organisations who offer life changing opportunities to people affected by cancer. However in all cases the N.H.S has explained how difficult it is for them to promote the services, and charities have shown little appetite to look unless there is a major brand benefit for them. There are so many service providers like

The Hidden Costs Of Cancer

The Hidden Costs Of Cancer

When I was originally diagnosed back in 2007, my mind initially turned to finances and work. It wasn’t the disease that frightened me, but the fear of not being able to provide for my family. Of course we have got by since then, but not without much stress and worry over a long period. I have talked about the cost of serious illness frequently, and not just in financial terms, but the below piece from Sacha shows us in very graphic terms the impact her son’s terrible illness had on her family and friends.   “The conversation with my closest girlfriend 8 years ago is still crystal clear, after my husband and I had finally got home after six weeks on the Children’s Neurosurgical Ward at superb Southampton General Hospital

Coping With Reality (Abi’s Story)

Coping With Reality (Abi's Story)

This week it is a real pleasure to feature this very inspiring piece from Abi, who is a great friend of mine. She talks about the difficulties of living with very complex cancer, and how she tries to focus on the positive things in her life. “Living with secondary breast cancer is hard. There is no way of making breast cancer pink, fluffy, fun, sparkly or easy; contrary to what ‘Pinktober’ tells you! The ‘pink’ army have nothing but good intentions of that I have no doubt; however it is no mean feat living through October when you have incurable breast cancer. The focus of the majority of the campaigns is on early diagnosis, primary cancer being treatable, survivable and ‘doable’ as a well known TV personality said recently. All of

De-Coding Women’s Cancers: (A Unique Perspective From Athena Lamnisos)

De-Coding Women's Cancers: (A Unique Perspective From Athena Lamnisos)

As you are aware my work involves working across all tumour types, as I see so many issues common to us whichever cancer we face. My experience has shown me that certain cancers are causing some unique problems for us, as it seems that for both males and females, there appear some taboos about dealing with these. Many are detected far too late, which means they are so difficult to treat. Of course we all have our own ideas about how to improve things, but I am delighted to be able to feature today, a very unique perspective from Athena Lamnisos, who is the CEO of The Eve Appeal. In this fascinating piece, Athena shares her own views and gives us an insight into some of the obstacles in the charity world. “Now that we’re now two

What’s In A Name? (Guest Post From Kaz)

What's In A Name? (Guest Post From Kaz)

We have now entered September which is a really busy “awareness month.” I have my own personal crusade which is #BloodCancer,  plus #GynaecologicalCancer, and a very special one for me is also #ChildhoodCancer, I’m sure there are many others too! My work is not tumour specific so I am involved in most cancers in one way or another and initially I never really understood the Awareness Months, but now I do. Cancer dominates our lives and we tend to be hearing about it more frequently. There are numerous charities for most common tumour types and it is an opportunity for them to focus on a common goal, and get the public to concentrate on their cause and issues. Personally speaking I think this way of working should be done all year but that is

My Cancer Story (Video)

My Cancer Story (Video)

Several weeks ago I was invited by Cancer Stories to share my story and have it filmed to enable others to learn from what happened to me. The project is an incredible one with so many benefits, for people like me by recounting the impact cancer has had in our lives, and also for anyone watching to be able to use our experience positively for themselves. It takes the form of one complete video of my journey from diagnosis to current day, and also key segments talking about the impact of diagnosis, work, family etc.(Check out PLAYLIST for further details.) To see more about Cancer Stories they are also on Faceboook: https://www.facebook.com/cancerstoriesonline  and Twitter: @cancer_stories If you think that there is anything in my story that might be valuable to someone you know please