Is There A Cancer Conspiracy?
When I first entered the cancer world I was in shock and just trying to stay alive as long as I could. According to the clinicians that wouldn’t be long. But slowly, living past my ‘use by date’ I knew…
Category cancer charities
The Inequality Within Cancer
I would like to thank the incredible Maggie Watts @maggiewatts for sharing her very moving and frustrating story, about the dreadful lack of inaction within the Pancreatic Cancer sector. “Imagine you want a sparkly new outfit but the shop can…
Cynical, Or Public Interest?
I rarely start my posts with a video, but this one is different, as you need to see the discussion point first! The things I see in the cancer sector have almost made me immune to the very tasteless advertising…
Authenticity, Integrity And Honesty!
This week I had an interesting conversation about the future of charities. Of course the world is changing incredibly fast and I have to ask if they will still exist in their current form once the dust from Covid has…
The Realities Of Cancer In The UK
My last few months have been busier than I ever imagined. With the delays and cancellations of many cancer services, I have found myself forced into action! Together with Jo Taylor and many others from the online community, we are…
Patients Are Now Out of Patience!
The world is a very different place now we are living with Covid! That certainly includes the cancer sector, which has now been set back many years, by lack of investment and urgency, amongst other things. Including NHS staff, we…
Why I Must Work Outside The System!
Back in 2008, I realised that I was going to donate whatever time I had left, to help improve life for people living with cancer. There was so much wrong with the ‘system,’ and I knew I had skills that…
Patients Are Also Experts!
Just before lock-down I was due to be speaking in Madrid at an EBMT conference about the growing need for patient involvement, particularly in research. I was very honoured when The Lancet invited me to write a piece for them,…
