Archive for the cancer charities Category

Cancer Survivorship, A Clinician’s View!

Cancer Survivorship, A Clinician's View!

Through this site I am able to share the many varied experiences we find when living with cancer. Mostly these people are patients and carers, but last year I was lucky enough to meet Dr Oliver Minton, who is a Consultant at my own hospital in London. He had some very interesting views and I was delighted to be able to share them then, however they seem even more appropriate today! “I was invited to attend the inaugural cancer survivorship conference in Brussels at the time our interests aligned (and indeed still do). The conference felt different with patient groups, bankers, actuaries and even royalty alongside all the usual suspects. I left feeling hugely positive about what could be achieved with governmental and organisational backing. However this was in 2014

Three Years On But Nothing’s Changed!

Three Years On But Nothing's Changed!

My inbox is full and our work at Your simPal is getting incredibly busy as word spreads. I often reflect on pieces I have written in the past, and found this one that sums up exactly how I feel today, FRUSTRATED!! Why am I being contacted by so many more people who cannot find what they need with existing organisations? I am wondering what relevance many of our services have today in this fast changing world? I’m shocked that nothing really has improved in this time. Let us remember that cancer is a time limiting disease!  “But I have to admit to writing this piece with a dark cloud of frustration hanging over me. There was a constant theme during this week, and that came every day from very contrasting

No Technology Can Replace Human Engagement!

No Technology Can Replace Human Engagement!

In recent weeks I have been busy giving presentations to organisations interested in the work of our charity Your simPal.  Wherever I go, without fail I am approached by people who want to talk about someone they know and their experiences. Cancer is finally not so much the ‘elephant in the room’ and people are now more comfortable talking about it. As well as talking face to face, we are now approached regularly via our Freephone line by people who just want to talk. During the last few weeks I have been supporting some good friends of ours who have just retired but both have been diagnosed with cancer within months of each other. They have become confused and angry as nobody has taken the time with them to actually talk. Not

Independent Cancer Support Needs A Voice Too!

Independent Cancer Support Needs A Voice Too!

It seems that we are now finally entering the summer season, and I make no apologies for refreshing the below post which I wrote 3 years ago!  This is yet another example of the ‘cancer charity cartel’ that exists. Such an incredible support service for people affected by cancer, rarely even mentioned by most large cancer charities, as it is independent and not on brand. Unfortunately nothing much seems to have changed in that time! “I consider myself very privileged to do the work I do and meet so many wonderful people. The ‘asks’ I receive are varied, but I will only ever consider projects if I can see some tangible results in the short term. So when I was invited to visit  The Grove Hotel in Bournemouth and check out

Is There A Cancer Charity Cartel?

Is There A Cancer Charity Cartel?

Those of you that are regular readers of my blog will know well that I am not a lover of large cancer charities or healthcare organisations.  Simply because, most are run with self interest at the heart, focussing mainly on fundraising and brand awareness. With little or no interest in collaborating or listening to innovative ideas from outside their own brand. This sector is now dominated by the same few names, who have a bulk of the funds to promote themselves more often. They are now the same faces who pop up on our television or in the media, talking about how things should improve. There now exists a cartel of charities which doesn’t listen to what is really going on for people affected by cancer. Many of their ideas

Cancer And Commercial Collaborations

Cancer And Commercial Collaborations

My work means that I am constantly communicating with people around the world, and I find it fascinating the differences that there are from country to country. Today I am delighted to share a piece from my friends at Tommy John, a men’s underwear designer company based in New York, who are working with the Testicular Cancer Foundation to raise awareness of this cancer. This type of collaboration is becoming more common and in many ways is a good thing. However I am personally sceptical that we don’t get to the situation which we have with Breast Cancer, that it is more about selling products and promotion, than raising awareness and producing positive results. Our world is changing rapidly, and in the cancer sector we need to be looking at all opportunities to

“I’m Sorry But You Have Womb Cancer”

"I'm Sorry But You Have Womb Cancer"

I have been to another meeting this week, held by individuals working together to support people after a cancer diagnosis. There was so much passion in the room as people shared their personal experiences and expertise, and explained how they planned to expand their work. There was a Q+A after the presentation and a Health Professional asked where the money to support the project was coming from as the N.H.S was in severe financial straits. Personally I am fed up with that being wheeled out time after time, as an excuse not to change things. It has become an easy answer to everything. Actually the facts are that there are some incredible resources for people affected by cancer outside the system. However, despite the financial issues, the N.H.S etc have

Entering Very Humbling Times.

Entering Very Humbling Times.

It has been a few weeks since I have written a personal blog, as I have been on a bit of a road trip. Although I suffer with terrible fatigue, I have had to push myself through some incredible presentations and meetings. My work is reaching the level that I have always aspired to, so it is difficult to pass up the many incredible opportunities that are now coming my way. With the combination of Your simPal and my own personal work, many new opportunities are opening up, and more and more people are becoming interested in what we do. This is leading to being invited to present nationally and internationally, my ideas and projects. Since I got sick, I have lost a lot of my confidence, and despite my

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