Archive for the cancer information Category

Stay Kind To Yourself!

Stay Kind To Yourself!

Unfortunately it has been quite a few weeks since I have been able to sit down and write a blog. Pressure for time has been extreme during November. Not really down to bad planning but many exciting events asking me to speak, unfortunately all coming within the same month. If I add the travelling into the mix, I have found it difficult at times, and this period ended with me being a guest speaker at a fabulous conference in Vienna, which was an incredible experience, but very physically and emotionally demanding. December is deliberately much quieter, and time to recuperate and build up my strength, for what will be another challenging year. I am finding myself frequently torn between doing more speaking roles, and increasing my travelling, or taking my

This Is Why “I’m Fine!”

This Is Why "I'm Fine!"

As most of you know well, my own health can be very unreliable, and if I’m honest it is something I get fed up with talking about in a social setting. Unfortunately the fact is that I will never have normal health now, and will always be reliant on hospital care at some stage, and this post is prompted by some conversations I have had recently whilst doing my support work. When meeting people for the first time it is usual to explain what connection you have with cancer, to help you understand their experience. This I have done, which has prompted numerous conversations later about how no one would know what I have been through and how well I look. Everyone is very kind and well meaning, and actually

Bottom Of The League, But More Excuses!

Bottom Of The League, But More Excuses!

There is nobody who likes to look at the world through ‘rose tinted’ glasses more than me! But at times that view must be tempered with a cold dose of reality. One of the headlines I read recently was ‘Britain sits at bottom of global league table for cancer survival rates.’ Unfortunately headlines like this don’t shock me anymore, why should we expect anything else? With a Government that has lost interest in governing, a Health Service trying to stay afloat, and large cancer charities jostling each other for money and influence, what chance is there for patients? Yes the figures are only up till 2014 and of course people are already arguing that things have improved, but those are policy makers, and not patients, having their lives torn apart

Travelling With And During Cancer

Travelling With And During Cancer

This week I was a member of an ‘expert panel discussing’ ‘travelling with and after cancer.’ I was invited by Avril from Cancer Central who had got together an incredibly diverse mix of experiences which seemed to answer all the questions we were asked. They came in as we went out on YouTube and Facebook live. Several of us are living with cancer and could answer them with passion and authenticity! Leaning on our own personal experiences, not all good, but great for us all to learn from. We have received lots of positive feedback since, and many who were unable to watch live have followed the discussion later on the video that was made. I hope you enjoy watching it as much as we enjoyed sharing our experiences with

Cancer Care Is Lost Amongst Political Posturing!

Cancer Care Is Lost Amongst Political Posturing!

The one thing we all know is that cancer does not wait for anything. It continues on it’s destructive path no matter what is happening in the world, showing no respect to any human in it’s way. My belief is that it is the modern day plague. On most days our media will contain stories about food, pollution and lifestyle encouraging the relentless charge of cancer. Also we hear about wonderful new treatments that might change our lives in the future. We have indeed made some progress over the years with approximately 50% of  us actually living with the disease rather than dying of it. But our chances of being directly affected by cancer have got worse, going from 1 in 3 to just 1 in 2! We have already

Tired Of Being Tired?

Tired Of Being Tired?

Yep that’s me too! Despite the number of projects I am involved in, every one takes a massive effort, not only physically but emotionally too! I often say I have the best job in the world. Meeting and helping incredible people whilst having fun can’t be beaten, but for me it is a major task to just get out of bed, as my treatment side effects and the ageing process take their toll. But being able to improve the lives of people affected by cancer has become my oxygen. Recently I was contacted by the incredible Jelle Damhuis from Holland. He is a man who has experienced cancer more than once in his young life and like many of us wanted to use his personal experience to help others. He

We have the tools and things must improve!

We have the tools and things must improve!

This week has been treatment week, so Monday and Tuesday are filled up, but I always try and make the most of my time, and am generally communicating via Twitter or talking to staff and patients. I have a continual thirst for information.I managed to talk to a good number of patients, and also a couple of very senior Health Professionals.   As you know, my ‘crusade’ is to improve support for people affected by cancer. Obviously, I make my own observations of things, during my endless visits to hospitals, but I am intrigued to see how other people view their situation. Do patients feel that things could be improved or are they content with what is being done? I also wonder if Health Professionals feel that more should be

Do you get the support you require?

Do you get the support you require?

This week has involved a great variety of work, and I have had a lot of communication around one subject, cancer support. I have spent many hours on social media, and have attended several meetings, either in a clinical setting or a social environment, talking to people who are involved in providing it. I also include myself in that, as support provided via the social media platforms is proving to be so important, the way we are now living our lives. As my internet work increases, I find more and more people around the world, doing such wonderful things, all working under the umbrella of cancer support. It feels like an army! However, when I talk to patients, which I do frequently, either in my work, or when I am being treated myself, I