Archive for the cancer information Category

Travelling With And During Cancer

Travelling With And During Cancer

This week I was a member of an ‘expert panel discussing’ ‘travelling with and after cancer.’ I was invited by Avril from Cancer Central who had got together an incredibly diverse mix of experiences which seemed to answer all the questions we were asked. They came in as we went out on YouTube and Facebook live. Several of us are living with cancer and could answer them with passion and authenticity! Leaning on our own personal experiences, not all good, but great for us all to learn from. We have received lots of positive feedback since, and many who were unable to watch live have followed the discussion later on the video that was made. I hope you enjoy watching it as much as we enjoyed sharing our experiences with

Cancer Care Is Lost Amongst Political Posturing!

Cancer Care Is Lost Amongst Political Posturing!

The one thing we all know is that cancer does not wait for anything. It continues on it’s destructive path no matter what is happening in the world, showing no respect to any human in it’s way. My belief is that it is the modern day plague. On most days our media will contain stories about food, pollution and lifestyle encouraging the relentless charge of cancer. Also we hear about wonderful new treatments that might change our lives in the future. We have indeed made some progress over the years with approximately 50% of  us actually living with the disease rather than dying of it. But our chances of being directly affected by cancer have got worse, going from 1 in 3 to just 1 in 2! We have already

Tired Of Being Tired?

Tired Of Being Tired?

Yep that’s me too! Despite the number of projects I am involved in, every one takes a massive effort, not only physically but emotionally too! I often say I have the best job in the world. Meeting and helping incredible people whilst having fun can’t be beaten, but for me it is a major task to just get out of bed, as my treatment side effects and the ageing process take their toll. But being able to improve the lives of people affected by cancer has become my oxygen. Recently I was contacted by the incredible Jelle Damhuis from Holland. He is a man who has experienced cancer more than once in his young life and like many of us wanted to use his personal experience to help others. He

We have the tools and things must improve!

We have the tools and things must improve!

This week has been treatment week, so Monday and Tuesday are filled up, but I always try and make the most of my time, and am generally communicating via Twitter or talking to staff and patients. I have a continual thirst for information.I managed to talk to a good number of patients, and also a couple of very senior Health Professionals.   As you know, my ‘crusade’ is to improve support for people affected by cancer. Obviously, I make my own observations of things, during my endless visits to hospitals, but I am intrigued to see how other people view their situation. Do patients feel that things could be improved or are they content with what is being done? I also wonder if Health Professionals feel that more should be

Do you get the support you require?

Do you get the support you require?

This week has involved a great variety of work, and I have had a lot of communication around one subject, cancer support. I have spent many hours on social media, and have attended several meetings, either in a clinical setting or a social environment, talking to people who are involved in providing it. I also include myself in that, as support provided via the social media platforms is proving to be so important, the way we are now living our lives. As my internet work increases, I find more and more people around the world, doing such wonderful things, all working under the umbrella of cancer support. It feels like an army! However, when I talk to patients, which I do frequently, either in my work, or when I am being treated myself, I