Risk, Fear, And Uncertainty.
Engaging with people is what makes me tick. Of course in person is best, but since we have been unable to do that in recent times, Zoom etc has enabled us to stay in touch even if it is only…
Category cancer survival
Living With Metastatic Cancer
When I first got into the social-media sector of cancer, Jo Taylor was one of the first people I connected with and we have been friends ever since. She is incredibly passionate about the work she does, despite the fragility…
Patients Are Now Out of Patience!
The world is a very different place now we are living with Covid! That certainly includes the cancer sector, which has now been set back many years, by lack of investment and urgency, amongst other things. Including NHS staff, we…
“Learning To Love Myself Again.”
In the work I do I am used to hearing incredibly moving stories. Every one completely different, involving unique challenges. I often think I was ‘lucky’ to get cancer at the age of 51. Having lived a reasonable life and…
Why I Must Work Outside The System!
Back in 2008, I realised that I was going to donate whatever time I had left, to help improve life for people living with cancer. There was so much wrong with the ‘system,’ and I knew I had skills that…
Patients Are Also Experts!
Just before lock-down I was due to be speaking in Madrid at an EBMT conference about the growing need for patient involvement, particularly in research. I was very honoured when The Lancet invited me to write a piece for them,…
Back To The Biggest C!
I have been really proud to host my ‘open house’ for the last couple of months, but from this week we are back to the ‘Cancer Community!’ Covid19 seemed to sweep away everything in it’s path. It has rightly made…
The Positives Of Social-Media
I consider myself very lucky to be living in the time of the Internet and social-media. Having had my life turned upside by cancer, I really don’t know how things would have played out without it. Given my physical weaknesses…
The Gift That Keeps On Giving!
It didn’t feel right to write a blog now that didn’t include something about Corona Virus ( COVID19.) I don’t know about you but I am absolutely stunned at the stupidity of many people with their panic buying and selfish…
What Does ‘Success’ Look Like To You?
I was once asked by a great friend of mine what I considered success to look like for my life. That question caused me a great deal of thought, and much of that involved money in some shape or form.…
