Archive for the cancer survival Category

Cancer Survivorship, A Clinician’s View!

Cancer Survivorship, A Clinician's View!

Through this site I am able to share the many varied experiences we find when living with cancer. Mostly these people are patients and carers, but last year I was lucky enough to meet Dr Oliver Minton, who is a Consultant at my own hospital in London. He had some very interesting views and I was delighted to be able to share them then, however they seem even more appropriate today! “I was invited to attend the inaugural cancer survivorship conference in Brussels at the time our interests aligned (and indeed still do). The conference felt different with patient groups, bankers, actuaries and even royalty alongside all the usual suspects. I left feeling hugely positive about what could be achieved with governmental and organisational backing. However this was in 2014

Three Years On But Nothing’s Changed!

Three Years On But Nothing's Changed!

My inbox is full and our work at Your simPal is getting incredibly busy as word spreads. I often reflect on pieces I have written in the past, and found this one that sums up exactly how I feel today, FRUSTRATED!! Why am I being contacted by so many more people who cannot find what they need with existing organisations? I am wondering what relevance many of our services have today in this fast changing world? I’m shocked that nothing really has improved in this time. Let us remember that cancer is a time limiting disease!  “But I have to admit to writing this piece with a dark cloud of frustration hanging over me. There was a constant theme during this week, and that came every day from very contrasting

Change Is Changing!

Change Is Changing!

I have just returned from a lovely visit to Somerset, catching up with long term friends. Of course we are getting older and have more health ailments as the years go by, so much of our conversations included our slowly fading health. It really was more fun than it sounds! But our friends have settled into their retirement and moved south from London, to live a more quiet lifestyle. They don’t embrace change and find it very difficult to deal with. They like things to be as they always were, and to be fair in Somerset many aspects of life have stood still for some time, but even there they cannot escape the feeling of  a constant changing life, and the uncertainty that can bring. This took me back to

No Technology Can Replace Human Engagement!

No Technology Can Replace Human Engagement!

In recent weeks I have been busy giving presentations to organisations interested in the work of our charity Your simPal.  Wherever I go, without fail I am approached by people who want to talk about someone they know and their experiences. Cancer is finally not so much the ‘elephant in the room’ and people are now more comfortable talking about it. As well as talking face to face, we are now approached regularly via our Freephone line by people who just want to talk. During the last few weeks I have been supporting some good friends of ours who have just retired but both have been diagnosed with cancer within months of each other. They have become confused and angry as nobody has taken the time with them to actually talk. Not

Independent Cancer Support Needs A Voice Too!

Independent Cancer Support Needs A Voice Too!

It seems that we are now finally entering the summer season, and I make no apologies for refreshing the below post which I wrote 3 years ago!  This is yet another example of the ‘cancer charity cartel’ that exists. Such an incredible support service for people affected by cancer, rarely even mentioned by most large cancer charities, as it is independent and not on brand. Unfortunately nothing much seems to have changed in that time! “I consider myself very privileged to do the work I do and meet so many wonderful people. The ‘asks’ I receive are varied, but I will only ever consider projects if I can see some tangible results in the short term. So when I was invited to visit  The Grove Hotel in Bournemouth and check out

Is There A Cancer Charity Cartel?

Is There A Cancer Charity Cartel?

Those of you that are regular readers of my blog will know well that I am not a lover of large cancer charities or healthcare organisations.  Simply because, most are run with self interest at the heart, focussing mainly on fundraising and brand awareness. With little or no interest in collaborating or listening to innovative ideas from outside their own brand. This sector is now dominated by the same few names, who have a bulk of the funds to promote themselves more often. They are now the same faces who pop up on our television or in the media, talking about how things should improve. There now exists a cartel of charities which doesn’t listen to what is really going on for people affected by cancer. Many of their ideas

My Motivation!(VIDEO)

My Motivation!(VIDEO)

I wanted to follow last weeks ‘ten year reflection post’ with a little summary of the work I do, how it started and why it exists. As time has gone on, I have been involved in many cancer projects, and spend my days helping and advising people throughout the sector. From patients and carers through to international pharmaceutical companies, I am continually looking at the cancer sector from many perspectives. That said, the same problems still exist, which are poor communication, lack of collaboration, and a complete failure to put the people affected by cancer at the heart of everything that is done in their name. At every professional conference I attend I hear the same comments “the patient talk was the best bit!” Of course it was, as the rest consists

And Ten Years Later!

And Ten Years Later!

” Ok, I have cancer but what can you do?” “We can’t cure you, just manage your disease.” ” How long do I have?” “Unless you are extremely lucky, about 6 months.” So started my entirely unexpected experience with cancer! Incredibly that was ten years ago this year. There have been so many ups and downs, emotions incredibly high then dramatically low, with very little in between. Living between life and death for many of those years, things have really only recently become stable in the last year or so. On reflection I don’t really know how I have got this far, as there were so many times that I just wanted it all to stop. Not just for me but my family too. The raw emotions of thinking things will be