Archive for the cancer Category

Macmillan Cancer Support, Are You Listening Yet?

Macmillan Cancer Support, Are You Listening Yet?

I have just been sent a copy of the latest set of accounts from Macmillan Cancer Support, the headline being that ‘fundraised income’ dropped from £247.7m in 2017 to £230.8 in 2018. A drop of nearly £17m, which is large in anyone’s book. So finally even the ‘big green corporate beast’ of the cancer world is being impacted by it’s continual practice of wanting to totally dominate the sector, from small groups right up to Government. Doing it’s best to tell us what we want/need, which of course must be right because Macmillan tell us! This organisation has become the darling of the media and politicians. On almost any cancer related issue it seems it is not complete without a quote from their many highly paid ‘media friendly’ team. Macmillan

Travelling With And During Cancer

Travelling With And During Cancer

This week I was a member of an ‘expert panel discussing’ ‘travelling with and after cancer.’ I was invited by Avril from Cancer Central who had got together an incredibly diverse mix of experiences which seemed to answer all the questions we were asked. They came in as we went out on YouTube and Facebook live. Several of us are living with cancer and could answer them with passion and authenticity! Leaning on our own personal experiences, not all good, but great for us all to learn from. We have received lots of positive feedback since, and many who were unable to watch live have followed the discussion later on the video that was made. I hope you enjoy watching it as much as we enjoyed sharing our experiences with

Cancer Care Is Lost Amongst Political Posturing!

Cancer Care Is Lost Amongst Political Posturing!

The one thing we all know is that cancer does not wait for anything. It continues on it’s destructive path no matter what is happening in the world, showing no respect to any human in it’s way. My belief is that it is the modern day plague. On most days our media will contain stories about food, pollution and lifestyle encouraging the relentless charge of cancer. Also we hear about wonderful new treatments that might change our lives in the future. We have indeed made some progress over the years with approximately 50% of  us actually living with the disease rather than dying of it. But our chances of being directly affected by cancer have got worse, going from 1 in 3 to just 1 in 2! We have already

Tired Of Being Tired?

Tired Of Being Tired?

Yep that’s me too! Despite the number of projects I am involved in, every one takes a massive effort, not only physically but emotionally too! I often say I have the best job in the world. Meeting and helping incredible people whilst having fun can’t be beaten, but for me it is a major task to just get out of bed, as my treatment side effects and the ageing process take their toll. But being able to improve the lives of people affected by cancer has become my oxygen. Recently I was contacted by the incredible Jelle Damhuis from Holland. He is a man who has experienced cancer more than once in his young life and like many of us wanted to use his personal experience to help others. He

Never Too Young!

Never Too Young!

I would like to thank Dafina, for sharing this incredibly passionate piece, which is very appropriate for Ovarian Cancer Awareness Month. “My name is Dafina and I’m 39. Four years ago, I was living a normal life and doing all the things that young people do. But while I was planning my future, I didn’t know my life was already in danger. I had no idea I was carrying a growing tumour, eventually weighing 500g. In July 2014 I started becoming very bloated, which was unusual for me. I saw my GP almost 4 months in a row, but she didn’t touch or examine my abdomen even once and instead sent me to see a gastroenterologist to have my stomach checked. They didn’t discover anything either, and I tried to

Travel Insurance From A Cancer Patient Perspective

Travel Insurance From A Cancer Patient Perspective

As a long term cancer patient myself, I have found so much discrimination against me. From banks to employers and insurance, particularly travel insurance! I used to travel for a living and it was something I wanted to continue, when I was well enough.Like everything connected with cancer, finding travel insurance is not at all straight forward. So I would like to talk about some of the things I have learned, which may help you to find clarity in this particular minefield. How do you choose your policy? Is it based on price, through a comparison website or recommendation? Do you wish to include your cancer or remove all pre-existing conditions? What a drama you might think, and I agree totally! Many of us are completely priced out of travelling

Where Does Your Cancer Cash Go?

Where Does Your Cancer Cash Go?

This year I am focusing on collaboration amongst patient supported work, and how we can affect the current poor outcomes for people affected by cancer. Despite the enormous amount of work and money that goes into it, our survival rates are still some of the worst in Europe. I call this a disaster and like most man made problems, this hasn’t just happened. It is the result of lazy healthcare organisations and a constant stream of politicians from all parties spouting no end of jargon, being massaged by millions of pounds and eager charities looking to further their own influence. Nobody within that cycle wanting to step out of line and lose a cosy career. We all know the increasing cancer figures yet still we can’t improve. Of course this

Making Patients Number One!

Making Patients Number One!

There are times when it feels like I am swimming against the tide, talking about the uncomfortable things that I see, or more to the point don’t see in cancer support. But virtually everyone I hear from sees the same things and we all agree that it is a scandal, the amount of wastage, be it time or money in the cancer sector mostly due to lack of collaboration. But of course this all comes from the top, and I have recently read the below piece which sums things up perfectly.   “Mental healthcare within the UK and globally has come under increasing scrutiny. With mental health problems being the main cause of overall disease burdens, the second leading cause of disability worldwide, and a major contributor to suicide, there