Archive for the cancer Category

Coming together in adversity

Coming together in adversity

This week has been like a massive blur! My treatment took up Monday and Tuesday, and I spent Wednesday, catching up with my work and preparing for some presentations which I was doing on Thursday and Friday. It is now 2 years since I started this particular regime of treatment, but with a combination of drugs and blood treatment, my body is able to help me have a reasonable quality of life. If I think back to when this issue started, I was unable to dress myself, or even cut my own dinner properly, and now thankfully I can do both! However it seems like at least another year before I will know if I can come off the treatment safely. This uses up a large chunk of time and energy, but

Do you know that feeling of isolation?

Do you know that feeling of isolation?

This week has been an incredibly busy week on social-media for me. Last weeks post found it’s way to many lovely people out there who shared and shared, till I think at last count we had 31 re-tweets of one link alone! Although my work is cancer focused of course, I try to talk on subjects that will affect all of us at some stage. Watching the news in recent weeks, I was shocked to see how physically isolated, a lot of our older generation has become. Nearly 1 in 5 older people are in contact with family, friends and neighbours less than once a week; and for 1in 10 it’s less than once a month. Half of all older people in the UK, about 5 million, say the television

Time is the real currency of my life!

Time is the real currency of my life!

I hope I’m not speaking too soon, but life has been very kind to me recently. I have found time, and stayed fit enough, to catch up with lots of people in the last few days. It seems that much as I decided that cancer was not going to dominate my life, it actually is, but in a different way to the one I had imagined! When I was diagnosed, on that terrible day back in 2007, I was very determined not to let cancer dictate my life, and to be able to still choose what I do with it. I suppose at that time, I was getting a little ahead of myself, as there was no guarantee that I was going to live for very long at all. However,

“Wearing cancer like a badge?”

"Wearing cancer like a badge?"

Well, this week I didn’t have to look too far for the content of this piece. There have been many potential subjects, but some can wait. This one has provoked a lot of outrage in the cancer community, and I wanted to add some thoughts of my own. I am mostly sceptical when reading/listening to media reports, as generally they are ‘slanted,’ and often taken out of context. When listening to celebrities talking, I am always seeking a hidden agenda. A new book/record/film to plug. Come out and say something controversial and get yourself back in the spotlight! So I was a little surprised to read some comments from Jennifer Saunders about her cancer experience, that I felt were quite thoughtless to her fellow patients. However at the bottom of

The Importance of cancer support via social media

The Importance of cancer support via social media

Since I was introduced to the world of social media, I could immediately see how powerful it might be. Certainly, like any new tool, you have to learn how to use it properly, to get the best from it. Which takes time. With trial and error you will find what it does well, and what it does, not so well. Coming from a business background, and attempting to always keep things simple, I couldn’t see what wasn’t to like, by connecting like minded people, across the world. Once I found myself taken hostage by cancer, I applied similar rules here. If I can’t find physical help for what I need, let me look on the net! I couldn’t find what I felt was required, so I thought I would try and create something. People

Do you ever feel lost?

Do you ever feel lost?

Regular readers of this blog will know that I have just returned from a weeks holiday. For a lot of people this is not such a big thing, but due to my illness and treatment regime, this is only the second time I have been abroad in 6 years. Considering that I was a regular traveller, both socially and commercially, this is a dramatic change in lifestyle for me. After struggling with my change of circumstances for many years, tossing and turning in my own life, trying to make sense of things, I have finally found a way of life that fits in with my health commitments. My treatment and hospital visits involve a strict routine, so I have had to adjust my family and work requirements around that. Everything now

How do you deal with your cancer?

How do you deal with your cancer?

Well, my previous post, where I was discussing the issues of survivorship, has become the most read, of all my pieces. It has provoked so much discussion throughout social media, which is very pleasing. Through this blog, I try and publicise issues, that people may find difficult to talk about. Also, our healthcare providers tend to ignore them, as there is not really a positive solution. I speak from my experiences as a current patient who is having treatment and spending a lot of time in the system. My pieces are up to date and based on what is actually happening. You may be reading plenty of reports from different areas, but I can tell you exactly what is happening now. My subject this week is about the contrasting ways

Are we prepared for increasing survivorship?

Are we prepared for increasing survivorship?

This question is actually not as crazy as it sounds. In the last few weeks, I have had numerous conversations with a very good cross section of people about the lack of support for people affected by cancer, once they step outside the hospital environment. Despite, the length of time of my own personal experience, I am still shocked, how little support is available. During my conversations with professionals, the biggest issue that I find is a demarcation of responsibility. My doctors, are doing their best to keep me alive. They care for all of my physical issues, either as an inpatient or by giving me drugs which I can take at home. Once I am outside of that scenario, it feels that I am on my own. My family and