Has Cancer Made You Feel Selfish?

Has Cancer Made You Feel Selfish?

When I was checking through the statistics of my blog recently, the most searched for post was this one which I wrote over a year ago. It was something that I felt had happened to me, and it seems like many people may feel the same! As the complexities in my own case increase, I still find it difficult to rid myself of this emotion. “I know, no one likes to consider themselves as selfish, especially me! But my encounter with cancer has made me wonder. Other people are always my concern, and the joy I receive in my life has always come from doing things for others. However, when cancer struck, my world turned on it’s head. Instead of me being a part of my family focus, I became

“We All Want The Same Thing!”

"We All Want The Same Thing!"

Despite the fact that I have no physical treatment planned for this year, I am still visiting hospital regularly to keep several side effects under control. Thankfully the cancer remains miraculously in remission, but as the years go on, complications are now developing due to the aggressive treatment I have had in the past. This week I had a very emotional meeting with the Consultant in charge of my recent three year period of blood treatment. It was a follow up appointment to see if it was continuing to work, and that my rejection disease had not returned. The treatment had solved my original problems, but unfortunately has left me with complications. However I had no choice really, and this was always a risk. I thanked the doctor and her team for giving me

Politics Within Cancer

Politics Within Cancer

With so much interest recently around politics in the UK, I felt it appropriate to revisit this post which I wrote last year. Unfortunately I have seen even more examples of progress in cancer care being slowed by politics since then, not just nationally but locally too. Personally I think things have got worse, and I have squirmed as I listened to senior politicians blaming each other for problems in the N.H.S recently. “As my own cancer journey extends, and my work expands, I am now involved with many different organisations, offering advice and experience, in the hope that support for people affected by cancer will be improved in the longer term. My own work before cancer, was tangible, and I could always see both short and long term results. I

Isolation (Soraya’s Story)

Isolation (Soraya's Story)

I had already formed in my mind this weeks piece, until I read a Facebook post from this incredible lady. It moved me so much, as I know her well through the online ‘Cancer Community,’ and could really feel the positivity coming from that post! Like many of us, Soraya has had some incredibly tough times, many recently, but I was thrilled to see that she had found a positive focus and was delighted when she agreed to share her story through this site. As I have mentioned numerous times, each age group has its unique problems when dealing with cancer, and this story is yet another of a young life interrupted far too early by the disease. As we all know, there are no rule books and we have to

“I’m Fine”

"I'm Fine"

As most of you know well, my own health can be very unreliable, and if I’m honest it is something I get fed up with talking about in a social setting. Unfortunately the fact is that I will never have normal health now, and will always be reliant on hospital care at some stage, and this post is prompted by some conversations I have had recently whilst doing my support work. When meeting people for the first time it is usual to explain what connection you have with cancer, to help you understand their experience. This I have done, which has prompted numerous conversations later about how no one would know what I have been through and how well I look. Everyone is very kind and well meaning, and actually

You Are Beautiful!

You Are Beautiful!

Getting older and watching nature take it’s course is one thing, but being diagnosed with cancer and seeing your body change in front of your eyes is quite something else! I tried to pretend I wasn’t bothered about it, but inside I was hurting like mad. Even as I had just turned fifty I still took a pride in my appearance, did my best to keep my weight under control and was lucky to have a good head of hair. I attempted to dress appropriately and would have liked to think I could have still turned the odd head, and I guess we would all like to think we could do that? Actually I was quite shocked at how much my appearance meant to me, even at my age. Firstly my hair came

What Are Your Online Boundaries?

What Are Your Online Boundaries?

In recent weeks I have had to cut back on a lot of my work, as my immune system was showing signs of creaking. Several infections and constant tiredness meant that yet again I would have to physically rest up to enable myself to re charge. This is nothing new, but is becoming more frequent, and very frustrating. As in my working life it seems I function much better when there is little time for thinking. Decisions seem to be made quickly and correctly, but with time to think things are very different. I sit and analyse things, weighing up the pros and cons and quickly become indecisive, the very opposite of what I have always been! So with plenty of thinking time, I started to look at the things I

When All Else Fails?

When All Else Fails?

In many respects I have been fortunate with my own cancer treatment. I was given a clear treatment plan, and although it involved extremely aggressive toxic drugs and a stem cell transplant, my body tolerated what was thrown at it, and the cancer is incredibly still in remission. However I have been unable to lead a normal life, as this treatment has led to many health complications, and that is the price I have had to pay. But what if the standard treatment had failed? Mantle Cell Lymphoma is a rare aggressive blood cancer and although treatments have improved in recent years, they are still limited. I guess I would have to step outside the system if all else failed. As a patient I have become closeted inside the healthcare regime that looks

Translate »