The politics of healthcare

The politics of healthcare

As my own cancer journey extends, and my work expands, I am now involved with many different organisations, offering advice and experience, in the hope that support for people affected by cancer will be improved in the longer term. My own work before cancer, was tangible, and I could always see both short and long term results. I always enjoyed seeing the benefits both personally and for my customers. However, having willingly entered the world of healthcare to use my time constructively, I find another completely different way of working, which frustrates me most of the time! I do understand the reasons why many things are done, but no one seems to realise that people affected by cancer do not have the time to wait, while numerous groups and committees discuss projects

Has cancer made me selfish?

Has cancer made me selfish?

I know, no one likes to consider themselves as selfish, especially me! But my encounter with cancer has made me wonder. Other people are always my concern, and the joy I receive in my life has always come from doing things for others. However, when cancer struck, my world turned on it’s head. Instead of me being a part of my family focus, I became the entire focus. Every where I went, people wanted to know about what was happening to me. Of course, I spent a long time in hospital, with chemotherapy, transplant and various complications, and I was the focus there too. Due to the complexities of my disease and treatment I required a lot of time and care from people. I was a very good giver, but a

The void when hospital appointments end.

The void when hospital appointments end.

The last few weeks have been busy, with some incredibly powerful stories shared, particularly regarding cancer and the work place. I was always aware that this was a much larger issue, than was talked about publicly, and some of the stories I have been told, have reinforced that view. My concern is that there are so many very important issues for people affected by cancer, that rarely get brought out into the open to be discussed properly. It seems that in many instances people feel uncomfortable talking about things publicly, and my impression is that this hinders progress in resolving these problems. I have found that one of the major obstacles to people dealing with issues is that of course many are coping with the physical and emotional aspects of cancer,

Cancer and the work place

Cancer and the work place

My last couple of posts have created a lot of discussion, particularly around the inequalities of cancer support. But today I would also like to add another area where there are real inequalities and that is the workplace! Personally I really understand the importance of work to us all, and it is possibly the thing that I miss most since my diagnosis. Like most things in life, you rarely appreciate what you have at the time. I was always overtaken with work and longed for the day I had time to myself. How ironic though. Then I had health and no time, now I have time and no health! I guess it goes to show that in life we rarely have everything at the time we need it. I have

You are not alone!

You are not alone!

I have always been personally aware of the inequalities of cancer support, and I was prompted to write last weeks post by some interesting conversations with people, who also had some similar views to my own. The object of this blog is to open up a dialogue by writing about subjects I know are current issues in the cancer community. As you are all aware by now, I have opinions on most things related to cancer, but it’s not only about what I think, so I try to facilitate a discussion. This enables me to understand what people really feel about things, and can give me some good solid ammunition when I am in communication with health professionals. This week has been the busiest week by far in terms of feedback, regarding my last

The Inequalities In Cancer Support

The Inequalities In Cancer Support

The lack of support I found on my own journey led me to do the work that I do, and although things have improved in that seven years, this is still an area that leaves much to be desired, and why I decided that I would personally try to improve this for others unfortunate to be affected by cancer. After years, of volunteering and gaining practical experience, then adding blogging and social media to my work, I can see that I am starting to reach the numbers of people I could only imagine, many years ago. My own experience showed me that a more realistic type of support was required, and I viewed that many issues are common for people affected by cancer, whichever tumour type they had. This is why

Learning to live again! (Claire’s story)

Learning to live again! (Claire's story)

This week I would like to introduce Claire Bullimore, who is a great friend of mine. As a young lady, her life was changed forever, when a brain tumour was discovered. “I will always remember the day the doctor said: “I’m very, very sorry but we can’t help you, you have a very small percentage chance of recovery.” That day was Wednesday 23rd May 2008. Up until then I had been an independent women living the dream – working hard, playing hard, and loving the London hustle and bustle. I laughed at early morning overcrowded rush hour commutes, smiled as I grabbed my hazelnut latte, and felt lucky to have an office on the 6th floor in Tooley Street with a wonderful view of the Thames and Tower Bridge. Earning

Will your social media live on?

Will your social media live on?

Well, this week has been incredibly busy again, with people still finding out about my recent award. I have done a couple of interviews and word seems to be spreading fast. We have had a great deal of interest in the site, which is brilliant because it means that we can help more people affected by cancer. I have had several requests from different charities asking if I can do things, some I will have time for, but others unfortunately not. This is a key time now in the development of my work. With massive thanks to my sponsor, we are dramatically expanding our reach, which presents a different problem, which is an increase of scale. The new interest is creating many exciting opportunities, but my main focus will always