The lack of support I found on my own journey led me to do the work that I do, and although things have improved in that seven years, this is still an area that leaves much to be desired, and why I decided that I would personally try to improve this for others unfortunate to be affected by cancer. After years, of volunteering and gaining practical experience, then adding blogging and social media to my work, I can see that I am starting to reach the numbers of people I could only imagine, many years ago. My own experience showed me that a more realistic type of support was required, and I viewed that many issues are common for people affected by cancer, whichever tumour type they had. This is why
This week I would like to introduce Claire Bullimore, who is a great friend of mine. As a young lady, her life was changed forever, when a brain tumour was discovered. “I will always remember the day the doctor said: “I’m very, very sorry but we can’t help you, you have a very small percentage chance of recovery.” That day was Wednesday 23rd May 2008. Up until then I had been an independent women living the dream – working hard, playing hard, and loving the London hustle and bustle. I laughed at early morning overcrowded rush hour commutes, smiled as I grabbed my hazelnut latte, and felt lucky to have an office on the 6th floor in Tooley Street with a wonderful view of the Thames and Tower Bridge. Earning
Well, this week has been incredibly busy again, with people still finding out about my recent award. I have done a couple of interviews and word seems to be spreading fast. We have had a great deal of interest in the site, which is brilliant because it means that we can help more people affected by cancer. I have had several requests from different charities asking if I can do things, some I will have time for, but others unfortunately not. This is a key time now in the development of my work. With massive thanks to my sponsor, we are dramatically expanding our reach, which presents a different problem, which is an increase of scale. The new interest is creating many exciting opportunities, but my main focus will always
Well, this week has been a really crazy one! Since winning the award last week, much back slapping has been done, and it has slightly taken my focus from my regular work. I have found it difficult to keep up with people wanting to communicate with me, and concentrate on my cancer work. However, now a lot of the early excitement has calmed down, life is beginning to get back to normal, and I can focus once again, on what is really important. Since the increase in publicity for my work, I have been contacted by people around the world, and excitingly, from people in Bangladesh, and Africa, where the financial issues of cancer care, are a major problem. In all instances, they were talking about the lack of support for people
As my regular readers will know, I seem to have no problem with finding subject matter for my weekly posts. My life is quite varied, and what tends to happen is that either I will read something, or talk to someone, that will prompt, that post. On some occasions the subject becomes apparent, as I have had cause to discuss them on more than one occasion. Most of my time is spent talking about cancer, either in a clinical environment, or via social media, but I also have a variety of other things happening, so the subjects can be much broader. Ironically this week, I had got to Friday, and there was no obvious subject to write about. I can really only write well because of my passion for the subject matter,
Well, one thing is for sure, and that is my new life is never boring! If my old life had gone to plan, I would be retired now, looking for something to fill up my time. We were going to do a lot of travelling, and discover new things. Well, I haven’t really succeeded with the travelling, but I have certainly discovered many new things that fill up my time! With cancer as your life partner, anything can happen, so making too many plans is not really easy. In my own instance, I have had pretty much continual treatment for nearly seven years, some routine, and some urgently required, and it has been very difficult to know from day to day, what to expect with my health. Even making social
This week I received the news that one of my very inspirational social media friends had tragically passed away. Unfortunately in the world I now live, death is a much more common occurrence for me than it was. I have become used to forming bonds, only for nature to come and break them in such an untimely manner. Losing Chris Gelken, was a massive blow to all of us, who’s life he touched. He spent his recent times, trying to improve the lives of people affected by cancer around the world, particularly in areas that are struggling for knowledge and expertise. Using his own unique talents to break down cultural divides for the common good. I was contacted by Chris who commented on a piece I had written for my
I am an official support partner of the Grove Hotel in Bournemouth. The only hotel in the UK specifically for people affected by cancer and other life limiting conditions.