It has been an incredible few weeks for me, with my writing work. I have won an award, and started writing for‘Beauty Despite Cancer’ But more importantly, this blog has been shared so much, via social media, recently. The last few posts particularly, have received some fantastic feedback from the readers. I feel extremely happy that my vision of reaching significant numbers of people affected by cancer, is finally starting to happen, and we are now being listened to by some very important Health Professionals. I have personally, invested a lot of time into this blog, because I believe that there is a need for an independent platform, like this. I am aware that there are a lot of people in the cancer community who are feeling isolated and don’t know where to turn.
Since I was introduced to the world of social media, I could immediately see how powerful it might be. Certainly, like any new tool, you have to learn how to use it properly, to get the best from it. Which takes time. With trial and error you will find what it does well, and what it does, not so well. Coming from a business background, and attempting to always keep things simple, I couldn’t see what wasn’t to like, by connecting like minded people, across the world. Once I found myself taken hostage by cancer, I applied similar rules here. If I can’t find physical help for what I need, let me look on the net! I couldn’t find what I felt was required, so I thought I would try and create something. People
Regular readers of this blog will know that I have just returned from a weeks holiday. For a lot of people this is not such a big thing, but due to my illness and treatment regime, this is only the second time I have been abroad in 6 years. Considering that I was a regular traveller, both socially and commercially, this is a dramatic change in lifestyle for me. After struggling with my change of circumstances for many years, tossing and turning in my own life, trying to make sense of things, I have finally found a way of life that fits in with my health commitments. My treatment and hospital visits involve a strict routine, so I have had to adjust my family and work requirements around that. Everything now
Well, my previous post, where I was discussing the issues of survivorship, has become the most read, of all my pieces. It has provoked so much discussion throughout social media, which is very pleasing. Through this blog, I try and publicise issues, that people may find difficult to talk about. Also, our healthcare providers tend to ignore them, as there is not really a positive solution. I speak from my experiences as a current patient who is having treatment and spending a lot of time in the system. My pieces are up to date and based on what is actually happening. You may be reading plenty of reports from different areas, but I can tell you exactly what is happening now. My subject this week is about the contrasting ways
This question is actually not as crazy as it sounds. In the last few weeks, I have had numerous conversations with a very good cross section of people about the lack of support for people affected by cancer, once they step outside the hospital environment. Despite, the length of time of my own personal experience, I am still shocked, how little support is available. During my conversations with professionals, the biggest issue that I find is a demarcation of responsibility. My doctors, are doing their best to keep me alive. They care for all of my physical issues, either as an inpatient or by giving me drugs which I can take at home. Once I am outside of that scenario, it feels that I am on my own. My family and
Last week I was invited into Croydon Radio to talk about my work in cancer social media. The interview has proved very popular, and I have been asked to post a link on the blog. If you clickhere it will open up the link. If you then click download it, a slider will appear. My interview is the second half of the show, and you can use the slider to control what you would like to listen to. For any further information regarding the show etc please contact @BrainTumorAunty I am an official support partner of the Grove Hotel in Bournemouth. The only hotel in the UK specifically for people affected by cancer and other life limiting conditions.
In my previous post I talked about the value of time, something I am beginning to be very aware of in my life. Being on fortnightly treatment, those days become markers in my life, and they seem to come round with increased speed.In the last few weeks I have been able to fit in some really exciting projects, and I have been asked numerous times about my working life before cancer, by people I have only recently become acquainted with. Therefore they don’t know anything at all about my experience. However, they seem genuinely surprised by the variety and quality of the projects that I am involved with. This causes me an element of internal frustration! In my regular working life, I would be doing a lot of difficult negotiations, for
Back in the days when I was a full time business consultant, I was very aware of the value of my time, as I was paid by result. Generally, the harder I worked, the more I earned. For most of us, the more hours we work, the more we get paid. But take us out of the work place, and it becomes more difficult to find the value of our time. Also, we may well value our own time very differently, to how others do. This post has arisen from a chance conversation, I had with a business expert who I am in contact with via social media. I learned so much from our chat, and I was very shocked to see how much my business brain, has been suffocated,