Why I Must Work Outside The System!
Back in 2008, I realised that I was going to donate whatever time I had left, to help improve life for people living with cancer. There was so much wrong with the ‘system,’ and I knew I had skills that…
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Patients Are Also Experts!
Just before lock-down I was due to be speaking in Madrid at an EBMT conference about the growing need for patient involvement, particularly in research. I was very honoured when The Lancet invited me to write a piece for them,…
Back To The Biggest C!
I have been really proud to host my ‘open house’ for the last couple of months, but from this week we are back to the ‘Cancer Community!’ Covid19 seemed to sweep away everything in it’s path. It has rightly made…
Shielding And Forgotten!
Much as we try to deal with one thing at a time, quite frequently life throws us a curved ball! We have never seen anything as destructive as Covid19. It has totally changed our lives and way of living forever.…
Do You Know An Angel?
I have never viewed what I do as work! It is just such a pleasure to talk to incredible people every day. Running this ‘open house’ session has maintained my focus on other people’s lives. Many doing incredible things for…
Blind, And Living In Lock Down
In these crazy times, it’s too easy to just think about how our own lives are affected. This is one of the reasons I wanted to run my ‘open house,’ during this period. I spotted a very powerful video by…
When The Clapping Stops?
When I started this ‘open house‘ project for my website, I wasn’t sure how it would go. I just knew that it wasn’t the right time to continue the strong words of cancer. I put out an invitation and have…
The Positives Of Social-Media
I consider myself very lucky to be living in the time of the Internet and social-media. Having had my life turned upside by cancer, I really don’t know how things would have played out without it. Given my physical weaknesses…
“My Isolation Is A Positive Thing!”
I am now 6 weeks into my personal lock down. Having been through much isolation due to my disease, I feel I am coping with the mental side well. The biggest miss for me is my grandchildren. Particularly my youngest…
My Mummy The Superhero!
As we get further into this crisis I have to admire the way we are dealing with it as a nation. Most of us helping each other and pulling together with the NHS to ensure we get through this with…
