During the last few weeks it has been incredibly busy with a rush to finalise some plans and partnerships for 2019. Both for simPal and my personal work things are accelerating, with many projects being discussed for the coming year. Social-media of course needs constant updating so my mind is staying continually active. My own campaigning has been in the public eye for more than seven years and there are times when I wonder if I have reached my ‘sell-by date!’ I am aware that our needs are changing rapidly, but I am moving very quickly into the tech areas, which is helping share my cancer work with people who up to now were not aware of it. Fresh ways of communication and exciting new doors opening because of it.
My last few weeks have been spent speaking at numerous events and also dealing with the long list of people who are contacting me with their frustrations of the current cancer system in the country! Personally I have become bored with the lack of interest from the three biggest organisations in this country, who are the ones that people naturally contact when talking about cancer care. It is no surprise to my regular readers that the NHS, Cancer Research and Macmillan Cancer Support are the ‘cartel ‘ that I refer to. Through the frequent conversations I am having about the lack of progress within cancer support in this country, these organisations are at the heart of it. The theme is common, the organisations rarely respond, and if they do, they
Poverty in the UK in 2018? Of course it exists, and appears to be on the increase from all the signs I see! The gap between rich and poor seems to be growing constantly now. That is a massive issue for us in this day and age, and is something I never believed I would still be seeing as an ageing man. This world is a harsh place when you have no money. I can speak from experience here. As a youngster my father moved out, and left my mother with massive debt. We had debt collectors constantly knocking on the door, and I had to leave school to start earning an income. I was lucky! That experience was positive for me, and I worked night and day after that
It’s been a few weeks since I have written a new post, so this one will be packed with plenty of goodies for you to enjoy! Writing is probably the favourite part of my work, but I am being pulled more away from that, to do more practical tasks. There is only so much you can put out through your website and social-media until people want to meet you in ‘real life!’ My personal work has reached a crescendo, and I have just returned from speaking in Kuala Lumpur at the World Cancer Congress. Now I am back into face to face meetings for the next couple of weeks. But I am not complaining! Yes, it takes a massive effort to do all these things, especially the travelling and presentations.
I am writing this piece after spending a very sociable evening with the team at Leukaemia Care and Quality Health. We were there to hear the latest patient statistics around blood cancers. After a few slides in, I felt a dramatic case of deja vu! It was as if my life had stood still for eleven years. Early diagnosis, emotional and financial support were the key findings. Exactly as they were when I was going through treatment in 2007. We were also talking about educating GPs to better recognise blood cancers, which I must admit worried me. Although there are some rare ones, I believe I can personally recognise most of the main signs myself! ‘Raising awareness’ are the words I hear most when talking about cancer. From diagnosis, treatment,
As you may know it is Gynaecological Cancer Awareness Month and I am delighted to feature a blog written by a young lady who wanted to tell us about her perspective and why she, like many of us believe that cancer should be a subject which is openly discussed during education. Obviously this is written from the female perspective but I believe it is important for all children to understand more about cancer, which has become the ‘modern day plague.’ “The results are in, and Eve Appeal-commissioned research has found that two thirds of parents want their children to receive a formal education regarding the signs and symptoms of cancer. The majority of participants believed that fostering open, informative conversations about cancer in the classroom could help combat associated stigmas
Now I know that I am getting old, when I say “where has that time gone?” This blog has been running for more than six years! It doesn’t feel like it as I love writing and sharing experiences, but so much has happened to me in that time. Starting this blog is one of the most life changing things that I have ever done. With encouragement from my mentor, the incredible Christina Lattimer who helped me to create a website with all the techie stuff, we now have an incredible brand known around the world, and is my 24/7 shop window. When I started, I was sceptical as to who wanted to read my work, and was it worth all the effort I put in? I went for neutral colours
Attending cancer conferences has become a big part of my life. Usually I am a speaker and rarely attend for the entire conference, but on other occasions I am there as a guest. Hours of watching very clever people reading from a PowerPoint presentation is not my idea of fun. There is only so long you can concentrate on that type of delivery, unless you are fully engaged in the subject. Senior management and clinicians are not always the best people to present as many lack any charisma, and struggle to do their subject justice. Of course cancer is a very difficult subject to talk about, and can be tricky to make it entertaining. I always feel that to make an impact, you really need a good spread of experience