Having been forced to give up the daily slog into London, it comes as a shock to the system when I have to do it. Especially as it is part of my volunteering process.But my goodness there is such a fantastic payback by the end of the day! I have had a lot of conversations regarding volunteering recently, and I can only say to anyone who is considering it, Just Do It!! On most Wednesdays, I meet a lot of volunteers at different stages of their journey. Some starting out, and others seeking a change of direction. Some are university graduates, others are older people looking to continue using their skills whilst looking for work.Each one with their own motivation. A lot of people get involved, because they or their
Where does the time go? Another 3 weeks have gone past and another review has come and gone. Sitting in the tatty, cramped waiting room that I have come to know so well. Peoples faces have various signs of emotion on them.I can only imagine what is going through their minds. Different people at different stages of their journey. Some yet to get their diagnosis, others dealing with theirs. I have to say that it is not at all the peaceful environment that patients need to deal with their issues. Two large toilets that open out into the gaze of fellow patients does not help things. The room is very cramped, tatty and busy. There is no private area at all.It reminds me of Clapham Junction station. Busy and noisy. It
Its Monday morning and I am preparing myself for my latest appointment with my consultant @ St Georges. We meet every 2/3 weeks to discuss my progress. Unfortunately there are always problems. that is why the visits are so frequent. This time I have yet another cold coming and my inflamation markers are rising meaning I have something going on inside and they will have to do more tests! Really enjoyed the w/end and it made me realise how important R+R is to people. I think we get so busy with work etc we forget that our body needs a break from it’s routine. Even though I don’t work, I have a routine, which more often than not involves hospital visits, which in themselves are tiring! Let alone if you
Had an awful journey last night to my meeting. Arrived late, (Which i hate!!) awful traffic, even at half term. Plenty of meaty subjects to discuss and we had most members in attendence, which made for a lively meeting. At the end of the meeting I was presented with a hand made card, and a bottle of fiz, to celebrate being selected for the TV show.What a lovely suprise!! It is so lovely that most of the areas of my work will be represented on the show. This is a testimony to all the fantastic people that I work with. Without their help I couldn’t do what I do. A fitting tribute and thank you all. It is a pleasure working with you! That made me think! A
Yesterday, was a really busy day. Meetings interviews and many phone calls. All positive stuff and great to be able to help when able. After a day like that I know that I have to take it easy, as my immune system will struggle and I can get sick very quickly. Also my blood treatment is taking it’s toll and by the time I have recovered sufficient energy from my previous treament, I am back having my next one. It is frustrating as my mind is so active but my body struggles to keep up. Still I have the experience to know when enough is enough. I am spending today at home,and later tonight I have a meeting at St Georges with my colleagues on the I.C.E group. We work
The time has come to officially launch my blog. It has been an extremely busy week for me, and has certainly had it’s ups and downs! The downs being my photopheresis treatment. I have this, for two days every two weeks, as part of my treatment for Graft v Host Disease which is affecting my muscles, and my ability to move properly. It involves being plugged into a machine for up to four hours. My blood is then treated under UV light and given back to me. These days are very tiring, as they involve travelling into London, having the treatment, then travelling home. The same again the following day. Unfortunately like a lot of cancer patients I have poor veins and they can’t seem to find any
Chris, What can I say? It has been a pleasure and a privilege working with you in 2011.I really value you commitment, passion, drive and ability to turn everything you touch into success.A personal thank you for all your hard work especially at times when you were unwell and always putting cancer patients as your number one priority. That’s pure dedication my friend. ps: Your blog looks fantastic. I am sure that you will populate it with lots of Chris’s epic stories. I am sure you have one, few, plenty to share! Wishing you all my very best wishes for the new year to come. Let’s hope it’s a healthy one.Lots of love to you and family.Nick x I am an official support partner of the Grove Hotel in Bournemouth.