This post is dedicated to the incredible Sean O’ Brien RIP I was asked recently what has been my most positive experience since nature enrolled me into the ‘cancer club.’ There was no hesitation with my reply which was, “the…
As time has gone on and our lives are becoming much more complex, I have found that my work is getting much busier. Of course the cancer campaigning has increased. But I’m finding that my private messages are filling up…
Let’s be honest there is no good time to have your life interrupted by cancer! But this year would definitely not be the one of choice! Many of us are already well into long-term treatment, and others are yet to…
During these unprecedented times, I am finding myself working with more and more incredible cancer clinicians. These guys are also struggling under the current circumstances with waiting lists etc getting longer. I would like to say a massive thank you…
My last few months have been busier than I ever imagined. With the delays and cancellations of many cancer services, I have found myself forced into action! Together with Jo Taylor and many others from the online community, we are…
Since Covid became the new ‘big C,’ I have never been so busy! Spending most days communicating with people from right across the cancer world. Including charities, healthcare professionals and of course patients. Everyone concerned about the delays in cancer…
Engaging with people is what makes me tick. Of course in person is best, but since we have been unable to do that in recent times, Zoom etc has enabled us to stay in touch even if it is only…
When I first got into the social-media sector of cancer, Jo Taylor was one of the first people I connected with and we have been friends ever since. She is incredibly passionate about the work she does, despite the fragility…
The world is a very different place now we are living with Covid! That certainly includes the cancer sector, which has now been set back many years, by lack of investment and urgency, amongst other things. Including NHS staff, we…
In the work I do I am used to hearing incredibly moving stories. Every one completely different, involving unique challenges. I often think I was ‘lucky’ to get cancer at the age of 51. Having lived a reasonable life and…
Back in 2008, I realised that I was going to donate whatever time I had left, to help improve life for people living with cancer. There was so much wrong with the ‘system,’ and I knew I had skills that…
Just before lock-down I was due to be speaking in Madrid at an EBMT conference about the growing need for patient involvement, particularly in research. I was very honoured when The Lancet invited me to write a piece for them,…
