Is There A Cancer Charity Cartel?

Is There A Cancer Charity Cartel?

Those of you that are regular readers of my blog will know well that I am not a lover of large cancer charities or healthcare organisations.  Simply because, most are run with self interest at the heart, focussing mainly on fundraising and brand awareness. With little or no interest in collaborating or listening to innovative ideas from outside their own brand. This sector is now dominated by the same few names, who have a bulk of the funds to promote themselves more often. They are now the same faces who pop up on our television or in the media, talking about how things should improve. There now exists a cartel of charities which doesn’t listen to what is really going on for people affected by cancer. Many of their ideas

My Motivation!(VIDEO)

My Motivation!(VIDEO)

I wanted to follow last weeks ‘ten year reflection post’ with a little summary of the work I do, how it started and why it exists. As time has gone on, I have been involved in many cancer projects, and spend my days helping and advising people throughout the sector. From patients and carers through to international pharmaceutical companies, I am continually looking at the cancer sector from many perspectives. That said, the same problems still exist, which are poor communication, lack of collaboration, and a complete failure to put the people affected by cancer at the heart of everything that is done in their name. At every professional conference I attend I hear the same comments “the patient talk was the best bit!” Of course it was, as the rest consists

And Ten Years Later!

And Ten Years Later!

” Ok, I have cancer but what can you do?” “We can’t cure you, just manage your disease.” ” How long do I have?” “Unless you are extremely lucky, about 6 months.” So started my entirely unexpected experience with cancer! Incredibly that was ten years ago this year. There have been so many ups and downs, emotions incredibly high then dramatically low, with very little in between. Living between life and death for many of those years, things have really only recently become stable in the last year or so. On reflection I don’t really know how I have got this far, as there were so many times that I just wanted it all to stop. Not just for me but my family too. The raw emotions of thinking things will be

Cancer And Commercial Collaborations

Cancer And Commercial Collaborations

My work means that I am constantly communicating with people around the world, and I find it fascinating the differences that there are from country to country. Today I am delighted to share a piece from my friends at Tommy John, a men’s underwear designer company based in New York, who are working with the Testicular Cancer Foundation to raise awareness of this cancer. This type of collaboration is becoming more common and in many ways is a good thing. However I am personally sceptical that we don’t get to the situation which we have with Breast Cancer, that it is more about selling products and promotion, than raising awareness and producing positive results. Our world is changing rapidly, and in the cancer sector we need to be looking at all opportunities to

Work And Cancer (Jeremy’s Experience.)

Work And Cancer (Jeremy's Experience.)

Today I have the great honour to host another piece from my friend Jeremy, who talks about his own experiences and opinions around work and cancer. “This is some of my reflections on cancer and work. These are personal thoughts, there are plenty of web sites which give official and legal advice. You can read my story here and I have been incredibly fortunate in having a really supportive and helpful employer. I have also been fortunate in having an employer at all — the situation with cancer is much more difficult for those out of work or self employed or where there are a handful of employees. It can be dangerous to generalise from your own experience as each type of cancer is different and every person needs to make their

“I’m Sorry But You Have Womb Cancer”

"I'm Sorry But You Have Womb Cancer"

I have been to another meeting this week, held by individuals working together to support people after a cancer diagnosis. There was so much passion in the room as people shared their personal experiences and expertise, and explained how they planned to expand their work. There was a Q+A after the presentation and a Health Professional asked where the money to support the project was coming from as the N.H.S was in severe financial straits. Personally I am fed up with that being wheeled out time after time, as an excuse not to change things. It has become an easy answer to everything. Actually the facts are that there are some incredible resources for people affected by cancer outside the system. However, despite the financial issues, the N.H.S etc have

Entering Very Humbling Times.

Entering Very Humbling Times.

It has been a few weeks since I have written a personal blog, as I have been on a bit of a road trip. Although I suffer with terrible fatigue, I have had to push myself through some incredible presentations and meetings. My work is reaching the level that I have always aspired to, so it is difficult to pass up the many incredible opportunities that are now coming my way. With the combination of Your simPal and my own personal work, many new opportunities are opening up, and more and more people are becoming interested in what we do. This is leading to being invited to present nationally and internationally, my ideas and projects. Since I got sick, I have lost a lot of my confidence, and despite my

Thinking ‘Outside The Box’ Should Be Normal Now!

Thinking 'Outside The Box' Should Be Normal Now!

It’s been some time since I wrote a new piece due to refocusing my priorities. Since Your SimPal has been live, approximately 6 months now, it has dominated my work. We are now helping increasing numbers of people across the country, and interest in our work is growing organically. It is challenging in so many ways, yet so satisfying knowing we can do something to improve the lives of many affected by cancer. People now know me for my interest in innovation in the cancer sector. There are many ways to help with existing problems if only large organisations would ‘look up’ and search outside their safety zone. Main stream services have little imagination having been ‘corporatised.’ The problem us innovators face is that most funding goes to large organisations and