My last few months have been busier than I ever imagined. With the delays and cancellations of many cancer services, I have found myself forced into action! Together with Jo Taylor and many others from the online community, we are…
Since Covid became the new ‘big C,’ I have never been so busy! Spending most days communicating with people from right across the cancer world. Including charities, healthcare professionals and of course patients. Everyone concerned about the delays in cancer…
Engaging with people is what makes me tick. Of course in person is best, but since we have been unable to do that in recent times, Zoom etc has enabled us to stay in touch even if it is only…
When I first got into the social-media sector of cancer, Jo Taylor was one of the first people I connected with and we have been friends ever since. She is incredibly passionate about the work she does, despite the fragility…
The world is a very different place now we are living with Covid! That certainly includes the cancer sector, which has now been set back many years, by lack of investment and urgency, amongst other things. Including NHS staff, we…
In the work I do I am used to hearing incredibly moving stories. Every one completely different, involving unique challenges. I often think I was ‘lucky’ to get cancer at the age of 51. Having lived a reasonable life and…
Back in 2008, I realised that I was going to donate whatever time I had left, to help improve life for people living with cancer. There was so much wrong with the ‘system,’ and I knew I had skills that…
Just before lock-down I was due to be speaking in Madrid at an EBMT conference about the growing need for patient involvement, particularly in research. I was very honoured when The Lancet invited me to write a piece for them,…
I have been really proud to host my ‘open house’ for the last couple of months, but from this week we are back to the ‘Cancer Community!’ Covid19 seemed to sweep away everything in it’s path. It has rightly made…
Much as we try to deal with one thing at a time, quite frequently life throws us a curved ball! We have never seen anything as destructive as Covid19. It has totally changed our lives and way of living forever.…
I have never viewed what I do as work! It is just such a pleasure to talk to incredible people every day. Running this ‘open house’ session has maintained my focus on other people’s lives. Many doing incredible things for…
In these crazy times, it’s too easy to just think about how our own lives are affected. This is one of the reasons I wanted to run my ‘open house,’ during this period. I spotted a very powerful video by…
